• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Forums

International Alliance of ALS/MND Associations › Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Member Forum
      Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
    • 2
    • 4
    • 6 years, 6 months ago

      Admin

  •  

Primary Sidebar

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Steve

    Steve

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Lombana, Spain

    Lombana, Spain

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Ann Nicol, USA

    Ann Nicol, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Art Eggert, USA

    Art Eggert, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Ali Var, Turkey

    Ali Var, Turkey

  • Susan Keldani, USA

    Susan Keldani, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • David Bishop, UK

    David Bishop, UK

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Jean

    Jean
    jean

  • Murat Morali, Turkey

    Murat Morali, Turkey

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login