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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Mike Small, UK

    Mike Small, UK

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Ali Var, Turkey

    Ali Var, Turkey

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Glen Elison, USA

    Glen Elison, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Hollister

    Hollister
    hollister

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • John Dinon, Australia

    John Dinon, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Susan Keldani, USA

    Susan Keldani, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • JP

    JP

  • Christian Bär, Germany

    Christian Bär, Germany

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Rob Tison, USA

    Rob Tison, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Steve

    Steve

  • Mark Miller, UK

    Mark Miller, UK

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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