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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Sally Pauls, USA

    Sally Pauls, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Ali Var, Turkey

    Ali Var, Turkey

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • JP

    JP

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Willi Klein, UK

    Willi Klein, UK

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Paul Launer, USA

    Paul Launer, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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