• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Member Forum

International Alliance of ALS/MND Associations › Forums › Member Forum

Welcome to the Member Forum! This forum is accessible only to registered members of the International Alliance of ALS/MND Associations. Use the form below to start a new conversation. You can also read and reply to previous conversation threads. You can use this forum to share news with the Alliance community, ask questions and exchange information. You can also use this as a "needs and offers" page - just ask for the resources or information you need to see if another member is able to help. While writing on the forum, we expect all members to treat one another with respect, even if we may disagree. Our Executive Director will moderate the forum to the best of her ability. Please alert Cathy if anyone is misusing the forum. We hope this is a wonderful resource for all of our members!
  • This forum has 2 topics, 2 replies, and was last updated 6 years, 5 months ago by Admin.
Viewing 2 topics - 1 through 2 (of 2 total)
    • Topic
    • Voices
    • Posts
    • Last Post
    • Coronavirus (COVID-19)

      Started by: Admin

    • 0
    • 1
    • 6 years, 5 months ago

      Admin

    • Forum Guidelines

      Started by: Admin

    • 1
    • 1
    • 10 years ago

      Admin

  •  

Viewing 2 topics - 1 through 2 (of 2 total)
  • You must be logged in to create new topics.
Log In

Primary Sidebar

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Art Eggert, USA

    Art Eggert, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Mike Small, UK

    Mike Small, UK

  • David Hall, USA

    David Hall, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Mike Cels, Canada

    Mike Cels, Canada

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Jay Epstein, USA

    Jay Epstein, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • David Bishop, UK

    David Bishop, UK

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

  • Michael Lee, Australia

    Michael Lee, Australia

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login