• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Forum Replies Created

  • Oh, bother! No replies were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jun 25
1:00 pm - 2:00 pm ADT

The ALS Turbocharged Living Scale: A New Way to Measure What Matters

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Hollister

    Hollister
    hollister

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • John Dinon, Australia

    John Dinon, Australia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • David Solomon, UK

    David Solomon, UK

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Mark Miller, UK

    Mark Miller, UK

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Anita Forte, USA

    Anita Forte, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Jon Newsome, USA

    Jon Newsome, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Jack Buzby, USA

    Jack Buzby, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ali Var, Turkey

    Ali Var, Turkey

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • David Bishop, UK

    David Bishop, UK

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Mary Thomas, Australia

    Mary Thomas, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

Footer

Subscribe to our Bi-monthly Newsletter

Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

"*" indicates required fields

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login