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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Willi Klein, UK

    Willi Klein, UK

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Art Eggert, USA

    Art Eggert, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Dick Dayton, USA

    Dick Dayton, USA

  • Hollister

    Hollister
    hollister

  • Bayley, Australia

    Bayley, Australia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Jean

    Jean
    jean

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Denis Blais, Canada

    Denis Blais, Canada

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Daniel Hare, USA

    Daniel Hare, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • John Russo, USA

    John Russo, USA
    final3878

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Sally Pauls, USA

    Sally Pauls, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Robbie Caliste, UK

    Robbie Caliste, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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