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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Anna Barrow, UK

    Anna Barrow, UK

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Rob Tison, USA

    Rob Tison, USA

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Mike Small, UK

    Mike Small, UK

  • Hollister

    Hollister
    hollister

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Frank Taylor, USA

    Frank Taylor, USA

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Jay Epstein, USA

    Jay Epstein, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Jean

    Jean
    jean

  • Zabun Nassar, England

    Zabun Nassar, England

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Ann Nicol, USA

    Ann Nicol, USA

  • Lombana, Spain

    Lombana, Spain

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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