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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Olga, Argentina

    Olga, Argentina

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Art Eggert, USA

    Art Eggert, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Rob Tison, USA

    Rob Tison, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Jason Goodman, USA

    Jason Goodman, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Jon Newsome, USA

    Jon Newsome, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Anna Barrow, UK

    Anna Barrow, UK

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Mike Small, UK

    Mike Small, UK

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • John Russo, USA

    John Russo, USA
    final3878

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Susan Keldani, USA

    Susan Keldani, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • JP

    JP

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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