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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Ali Var, Turkey

    Ali Var, Turkey

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Sally Pauls, USA

    Sally Pauls, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Ann Nicol, USA

    Ann Nicol, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Rob Tison, USA

    Rob Tison, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Bayley, Australia

    Bayley, Australia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • David Solomon, UK

    David Solomon, UK

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Phil Rossall, UK

    Phil Rossall, UK

  • Susan Anderson, USA

    Susan Anderson, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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