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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Jun 25
1:00 pm - 2:00 pm ADT

The ALS Turbocharged Living Scale: A New Way to Measure What Matters

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Susan Keldani, USA

    Susan Keldani, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Paul Launer, USA

    Paul Launer, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Phil Rossall, UK

    Phil Rossall, UK

  • Willi Klein, UK

    Willi Klein, UK

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • John Russo, USA

    John Russo, USA
    final3878

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • John Dinon, Australia

    John Dinon, Australia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Anita Forte, USA

    Anita Forte, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Timmy, Belgium

    Timmy, Belgium

  • Olga, Argentina

    Olga, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Christian Bär, Germany

    Christian Bär, Germany

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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