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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • David Bishop, UK

    David Bishop, UK

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Jason Goodman, USA

    Jason Goodman, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • JP

    JP

  • Anita Forte, USA

    Anita Forte, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Liam Dwyer, England

    Liam Dwyer, England

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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