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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

View Calendar

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Steve

    Steve

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Purningam Jacob, India

    Purningam Jacob, India

  • Greg Heydet, USA

    Greg Heydet, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Jon Newsome, USA

    Jon Newsome, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Alex, Argentina

    Alex, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Frank Taylor, USA

    Frank Taylor, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Jon Newsome, USA

    Jon Newsome, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Jason Goodman, USA

    Jason Goodman, USA

  • David Bishop, UK

    David Bishop, UK

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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