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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Willi Klein, UK

    Willi Klein, UK

  • Mike Small, UK

    Mike Small, UK

  • John Dinon, Australia

    John Dinon, Australia

  • JP

    JP

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Philip Brindle, England

    Philip Brindle, England

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Art Eggert, USA

    Art Eggert, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • John Russo, USA

    John Russo, USA
    final3878

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • David Watson, Scotland

    David Watson, Scotland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Lombana, Spain

    Lombana, Spain

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jon Newsome, USA

    Jon Newsome, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Hollister

    Hollister
    hollister

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Liam Dwyer, England

    Liam Dwyer, England

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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