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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Sally Pauls, USA

    Sally Pauls, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Frank Taylor, USA

    Frank Taylor, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • John Russo, USA

    John Russo, USA
    final3878

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Olga, Argentina

    Olga, Argentina

  • John Sweeney, USA

    John Sweeney, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Timmy, Belgium

    Timmy, Belgium

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Rob Tison, USA

    Rob Tison, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Anita Forte, USA

    Anita Forte, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Ann Nicol, USA

    Ann Nicol, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Len Johnrose, England

    Len Johnrose, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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