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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • David Bishop, UK

    David Bishop, UK

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Sally Pauls, USA

    Sally Pauls, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • JP

    JP

  • Animesh Kumar, India

    Animesh Kumar, India

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • David Hall, USA

    David Hall, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Liam Dwyer, England

    Liam Dwyer, England

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Bob Simonds, USA

    Bob Simonds, USA

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Ann Nicol, USA

    Ann Nicol, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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