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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Jack Buzby, USA

    Jack Buzby, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Dick Dayton, USA

    Dick Dayton, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Bayley, Australia

    Bayley, Australia

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Mark Miller, UK

    Mark Miller, UK

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Lombana, Spain

    Lombana, Spain

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Rosie Riley, USA

    Rosie Riley, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Jon Newsome, USA

    Jon Newsome, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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