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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Mark Miller, UK

    Mark Miller, UK

  • Susan Anderson, USA

    Susan Anderson, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Rob Tison, USA

    Rob Tison, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Daniel Hare, USA

    Daniel Hare, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • David Hall, USA

    David Hall, USA

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • John Dinon, Australia

    John Dinon, Australia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Anita Forte, USA

    Anita Forte, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Purningam Jacob, India

    Purningam Jacob, India

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Paul Launer, USA

    Paul Launer, USA

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Glen Elison, USA

    Glen Elison, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Susan Keldani, USA

    Susan Keldani, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Sally Pauls, USA

    Sally Pauls, USA

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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