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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Jay Epstein, USA

    Jay Epstein, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Paul Launer, USA

    Paul Launer, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Zabun Nassar, England

    Zabun Nassar, England

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Alex, Argentina

    Alex, Argentina

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Mike Cels, Canada

    Mike Cels, Canada

  • Len Johnrose, England

    Len Johnrose, England

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • David Hall, USA

    David Hall, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Ali Var, Turkey

    Ali Var, Turkey

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Denis Blais, Canada

    Denis Blais, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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