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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Susan Keldani, USA

    Susan Keldani, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Zabun Nassar, England

    Zabun Nassar, England

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Rosie Riley, USA

    Rosie Riley, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Jason Goodman, USA

    Jason Goodman, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Art Eggert, USA

    Art Eggert, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Jean

    Jean
    jean

  • John Russo, USA

    John Russo, USA
    final3878

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Mike Small, UK

    Mike Small, UK

  • Rob Tison, USA

    Rob Tison, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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