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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Olga, Argentina

    Olga, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Philip Brindle, England

    Philip Brindle, England

  • Alex, Argentina

    Alex, Argentina

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Lee Millard, England

    Lee Millard, England

  • John Sweeney, USA

    John Sweeney, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Phil Rossall, UK

    Phil Rossall, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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