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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Mike Cels, Canada

    Mike Cels, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Susan Anderson, USA

    Susan Anderson, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Lee Millard, England

    Lee Millard, England

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • David Bishop, UK

    David Bishop, UK

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • David Hall, USA

    David Hall, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • David Solomon, UK

    David Solomon, UK

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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