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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
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About

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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Jean Waters, UK

    Jean Waters, UK

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Dick Dayton, USA

    Dick Dayton, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • John Russo, USA

    John Russo, USA
    final3878

  • Christian Bär, Germany

    Christian Bär, Germany

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Liam Dwyer, England

    Liam Dwyer, England

  • Daniel Hare, USA

    Daniel Hare, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Ali Var, Turkey

    Ali Var, Turkey

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • John Sweeney, USA

    John Sweeney, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jay Epstein, USA

    Jay Epstein, USA

  • Frank Taylor, USA

    Frank Taylor, USA

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • David Solomon, UK

    David Solomon, UK

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • David Hall, USA

    David Hall, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Hollister

    Hollister
    hollister

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • David Watson, Scotland

    David Watson, Scotland

  • Mike Cels, Canada

    Mike Cels, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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