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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Mike Small, UK

    Mike Small, UK

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Mike Cels, Canada

    Mike Cels, Canada

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Sally Pauls, USA

    Sally Pauls, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Ali Var, Turkey

    Ali Var, Turkey

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Jon Newsome, USA

    Jon Newsome, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Frank Taylor, USA

    Frank Taylor, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Lombana, Spain

    Lombana, Spain

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Ian Gale, Australia

    Ian Gale, Australia

  • Jean

    Jean
    jean

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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