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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • Calendar of Events/Programs
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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Anita Forte, USA

    Anita Forte, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Jean Waters, UK

    Jean Waters, UK

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Olga, Argentina

    Olga, Argentina

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • John Dinon, Australia

    John Dinon, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • David Bishop, UK

    David Bishop, UK

  • Mike Small, UK

    Mike Small, UK

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Jason Goodman, USA

    Jason Goodman, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Zabun Nassar, England

    Zabun Nassar, England

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Len Johnrose, England

    Len Johnrose, England

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Mary Thomas, Australia

    Mary Thomas, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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