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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Liam Dwyer, England

    Liam Dwyer, England

  • Greg Heydet, USA

    Greg Heydet, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • David Hall, USA

    David Hall, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Rob Tison, USA

    Rob Tison, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • John Sweeney, USA

    John Sweeney, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Jason Goodman, USA

    Jason Goodman, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Len Johnrose, England

    Len Johnrose, England

  • Ann Nicol, USA

    Ann Nicol, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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