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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Bayley, Australia

    Bayley, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Phil Rossall, UK

    Phil Rossall, UK

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jack Buzby, USA

    Jack Buzby, USA

  • David Bishop, UK

    David Bishop, UK

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Philip Brindle, England

    Philip Brindle, England

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Daniel Hare, USA

    Daniel Hare, USA

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jon Newsome, USA

    Jon Newsome, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Mike Small, UK

    Mike Small, UK

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Jean

    Jean
    jean

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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