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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • David Watson, Scotland

    David Watson, Scotland

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Jean Waters, UK

    Jean Waters, UK

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Jack Buzby, USA

    Jack Buzby, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Lee Millard, England

    Lee Millard, England

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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