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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
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About

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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Timmy, Belgium

    Timmy, Belgium

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Dick Dayton, USA

    Dick Dayton, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Frank Taylor, USA

    Frank Taylor, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Liam Dwyer, England

    Liam Dwyer, England

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Ann Nicol, USA

    Ann Nicol, USA

  • John Dinon, Australia

    John Dinon, Australia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Ali Var, Turkey

    Ali Var, Turkey

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Glen Elison, USA

    Glen Elison, USA

  • Jean

    Jean
    jean

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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