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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Phil Rossall, UK

    Phil Rossall, UK

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Hollister

    Hollister
    hollister

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Dick Dayton, USA

    Dick Dayton, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Glen Elison, USA

    Glen Elison, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Steve

    Steve

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Christian Bär, Germany

    Christian Bär, Germany

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Lombana, Spain

    Lombana, Spain

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Jon Newsome, USA

    Jon Newsome, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • John Russo, USA

    John Russo, USA
    final3878

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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