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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Anna Barrow, UK

    Anna Barrow, UK

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Animesh Kumar, India

    Animesh Kumar, India

  • Daniel Hare, USA

    Daniel Hare, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • John Russo, USA

    John Russo, USA
    final3878

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • David Watson, Scotland

    David Watson, Scotland

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Philip Brindle, England

    Philip Brindle, England

  • Susan Keldani, USA

    Susan Keldani, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • JP

    JP

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Jason Goodman, USA

    Jason Goodman, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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