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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Lee Millard, England

    Lee Millard, England

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Olga, Argentina

    Olga, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Bayley, Australia

    Bayley, Australia

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Purningam Jacob, India

    Purningam Jacob, India

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Sally Pauls, USA

    Sally Pauls, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Bob Simonds, USA

    Bob Simonds, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Frank Taylor, USA

    Frank Taylor, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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