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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Rob Tison, USA

    Rob Tison, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Jay Epstein, USA

    Jay Epstein, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Susan Keldani, USA

    Susan Keldani, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Anita Forte, USA

    Anita Forte, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Sally Pauls, USA

    Sally Pauls, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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