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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Hollister

    Hollister
    hollister

  • Ali Var, Turkey

    Ali Var, Turkey

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • David Solomon, UK

    David Solomon, UK

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Jason Goodman, USA

    Jason Goodman, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Anita Forte, USA

    Anita Forte, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • Art Eggert, USA

    Art Eggert, USA

  • Purningam Jacob, India

    Purningam Jacob, India

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Mike Cels, Canada

    Mike Cels, Canada

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Sally Pauls, USA

    Sally Pauls, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mark Miller, UK

    Mark Miller, UK

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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