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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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About

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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • David Solomon, UK

    David Solomon, UK

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Len Johnrose, England

    Len Johnrose, England

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Ali Var, Turkey

    Ali Var, Turkey

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Timmy, Belgium

    Timmy, Belgium

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • John Sweeney, USA

    John Sweeney, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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