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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
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Upcoming Events

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

Dec 7
December 7 - December 8

Allied Professionals Forum

View Calendar

  • Jean Waters, UK

    Jean Waters, UK

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Willi Klein, UK

    Willi Klein, UK

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Olga, Argentina

    Olga, Argentina

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Alex, Argentina

    Alex, Argentina

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Glen Elison, USA

    Glen Elison, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Phil Rossall, UK

    Phil Rossall, UK

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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