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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Rosie Riley, USA

    Rosie Riley, USA

  • Philip Brindle, England

    Philip Brindle, England

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Purningam Jacob, India

    Purningam Jacob, India

  • Timmy, Belgium

    Timmy, Belgium

  • John Sweeney, USA

    John Sweeney, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Susan Anderson, USA

    Susan Anderson, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • David Solomon, UK

    David Solomon, UK

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Mark Miller, UK

    Mark Miller, UK

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Len Johnrose, England

    Len Johnrose, England

  • David Watson, Scotland

    David Watson, Scotland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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