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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

Dec 7
December 7 - December 8

Allied Professionals Forum

View Calendar

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jean

    Jean
    jean

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • John Dinon, Australia

    John Dinon, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Paul Launer, USA

    Paul Launer, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • John Sweeney, USA

    John Sweeney, USA

  • David Hall, USA

    David Hall, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • David Solomon, UK

    David Solomon, UK

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Len Johnrose, England

    Len Johnrose, England

  • Art Eggert, USA

    Art Eggert, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Jay Epstein, USA

    Jay Epstein, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Anita Forte, USA

    Anita Forte, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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