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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • David Watson, Scotland

    David Watson, Scotland

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Anita Forte, USA

    Anita Forte, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Len Johnrose, England

    Len Johnrose, England

  • Dick Dayton, USA

    Dick Dayton, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Lee Millard, England

    Lee Millard, England

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Jack Buzby, USA

    Jack Buzby, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Timmy, Belgium

    Timmy, Belgium

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Liam Dwyer, England

    Liam Dwyer, England

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Greg Heydet, USA

    Greg Heydet, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Jean

    Jean
    jean

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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