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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Steve

    Steve

  • Michael Lee, Australia

    Michael Lee, Australia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Greg Heydet, USA

    Greg Heydet, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Mike Small, UK

    Mike Small, UK

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Jon Newsome, USA

    Jon Newsome, USA

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Mark Miller, UK

    Mark Miller, UK

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • John Sweeney, USA

    John Sweeney, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Philip Brindle, England

    Philip Brindle, England

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Zabun Nassar, England

    Zabun Nassar, England

  • Paul Launer, USA

    Paul Launer, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Seckin McGuirk, England

    Seckin McGuirk, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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