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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jon Newsome, USA

    Jon Newsome, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • John Russo, USA

    John Russo, USA
    final3878

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Animesh Kumar, India

    Animesh Kumar, India

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Zabun Nassar, England

    Zabun Nassar, England

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Steve

    Steve

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Paul Launer, USA

    Paul Launer, USA

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Olga, Argentina

    Olga, Argentina

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Rosie Riley, USA

    Rosie Riley, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Bayley, Australia

    Bayley, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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