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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Ann Nicol, USA

    Ann Nicol, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Anita Forte, USA

    Anita Forte, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Lee Millard, England

    Lee Millard, England

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Jon Newsome, USA

    Jon Newsome, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Mike Small, UK

    Mike Small, UK

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Mike Cels, Canada

    Mike Cels, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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