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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

View Calendar

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Glen Elison, USA

    Glen Elison, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Bob Simonds, USA

    Bob Simonds, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • John Dinon, Australia

    John Dinon, Australia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Lee Millard, England

    Lee Millard, England

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Jon Newsome, USA

    Jon Newsome, USA

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Len Johnrose, England

    Len Johnrose, England

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Denis Blais, Canada

    Denis Blais, Canada

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Christian Bär, Germany

    Christian Bär, Germany

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • David Solomon, UK

    David Solomon, UK

  • Michael Lee, Australia

    Michael Lee, Australia

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Mikey Stone, ALS

    Mikey Stone, ALS

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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