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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Hollister

    Hollister
    hollister

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Animesh Kumar, India

    Animesh Kumar, India

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Sally Pauls, USA

    Sally Pauls, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • JP

    JP

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Olga, Argentina

    Olga, Argentina

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Jean

    Jean
    jean

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Susan Anderson, USA

    Susan Anderson, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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