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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Hollister

    Hollister
    hollister

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • David Bishop, UK

    David Bishop, UK

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Lombana, Spain

    Lombana, Spain

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Alex, Argentina

    Alex, Argentina

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Len Johnrose, England

    Len Johnrose, England

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • John Russo, USA

    John Russo, USA
    final3878

  • Daniel Hare, USA

    Daniel Hare, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Sally Pauls, USA

    Sally Pauls, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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