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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • JP

    JP

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Daniel Hare, USA

    Daniel Hare, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • David Solomon, UK

    David Solomon, UK

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Frank Taylor, USA

    Frank Taylor, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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