• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

@rachel

Profile

Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Ann Nicol, USA

    Ann Nicol, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Philip Brindle, England

    Philip Brindle, England

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Mike Small, UK

    Mike Small, UK

  • David Hall, USA

    David Hall, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jay Epstein, USA

    Jay Epstein, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Hollister

    Hollister
    hollister

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login