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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Zabun Nassar, England

    Zabun Nassar, England

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Steve

    Steve

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Hollister

    Hollister
    hollister

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • David Solomon, UK

    David Solomon, UK

  • Dick Dayton, USA

    Dick Dayton, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Lombana, Spain

    Lombana, Spain

  • Michael Lee, Australia

    Michael Lee, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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