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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Mike Small, UK

    Mike Small, UK

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Len Johnrose, England

    Len Johnrose, England

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Lombana, Spain

    Lombana, Spain

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Timmy, Belgium

    Timmy, Belgium

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Steve

    Steve

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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