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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Steve

    Steve

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Willi Klein, UK

    Willi Klein, UK

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Anna Barrow, UK

    Anna Barrow, UK

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Jean Waters, UK

    Jean Waters, UK

  • Michael Lee, Australia

    Michael Lee, Australia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Ian Gale, Australia

    Ian Gale, Australia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Anita Forte, USA

    Anita Forte, USA

  • John Dinon, Australia

    John Dinon, Australia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • David Solomon, UK

    David Solomon, UK

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Jason Goodman, USA

    Jason Goodman, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • David Hall, USA

    David Hall, USA

  • Phil Rossall, UK

    Phil Rossall, UK

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Alex, Argentina

    Alex, Argentina

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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