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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
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    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Anita Forte, USA

    Anita Forte, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Olga, Argentina

    Olga, Argentina

  • David Bishop, UK

    David Bishop, UK

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Hollister

    Hollister
    hollister

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Rob Tison, USA

    Rob Tison, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Rosie Riley, USA

    Rosie Riley, USA

  • Sally Pauls, USA

    Sally Pauls, USA

  • Alex, Argentina

    Alex, Argentina

  • Michael Lee, Australia

    Michael Lee, Australia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Glen Elison, USA

    Glen Elison, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • John Dinon, Australia

    John Dinon, Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ann Nicol, USA

    Ann Nicol, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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