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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Willi Klein, UK

    Willi Klein, UK

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Steve

    Steve

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Olga, Argentina

    Olga, Argentina

  • Frank Taylor, USA

    Frank Taylor, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Bob Simonds, USA

    Bob Simonds, USA

  • Hollister

    Hollister
    hollister

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Liam Dwyer, England

    Liam Dwyer, England

  • Glen Elison, USA

    Glen Elison, USA

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Christian Bär, Germany

    Christian Bär, Germany

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jon Newsome, USA

    Jon Newsome, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Alex, Argentina

    Alex, Argentina

  • Jay Epstein, USA

    Jay Epstein, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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