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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Glen Elison, USA

    Glen Elison, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Lee Millard, England

    Lee Millard, England

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • David Watson, Scotland

    David Watson, Scotland

  • Bob Simonds, USA

    Bob Simonds, USA

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Timmy, Belgium

    Timmy, Belgium

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Mike Cels, Canada

    Mike Cels, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Rosie Riley, USA

    Rosie Riley, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Michael Lee, Australia

    Michael Lee, Australia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • David Bishop, UK

    David Bishop, UK

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Mike Small, UK

    Mike Small, UK

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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