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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Jean

    Jean
    jean

  • Jon Newsome, USA

    Jon Newsome, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Alex, Argentina

    Alex, Argentina

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • JP

    JP

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Susan Keldani, USA

    Susan Keldani, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Daniel Hare, USA

    Daniel Hare, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Paul Launer, USA

    Paul Launer, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • David Bishop, UK

    David Bishop, UK

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Olga, Argentina

    Olga, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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