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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Mike Small, UK

    Mike Small, UK

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Susan Anderson, USA

    Susan Anderson, USA

  • Frank Taylor, USA

    Frank Taylor, USA

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Lombana, Spain

    Lombana, Spain

  • Anna Barrow, UK

    Anna Barrow, UK

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Purningam Jacob, India

    Purningam Jacob, India

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Greg Heydet, USA

    Greg Heydet, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Daniel Hare, USA

    Daniel Hare, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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