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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Hollister

    Hollister
    hollister

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Animesh Kumar, India

    Animesh Kumar, India

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Willi Klein, UK

    Willi Klein, UK

  • Bayley, Australia

    Bayley, Australia

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Jason Goodman, USA

    Jason Goodman, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Ali Var, Turkey

    Ali Var, Turkey

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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