• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

@rachel

Profile

Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Mike Small, UK

    Mike Small, UK

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Bayley, Australia

    Bayley, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Susan Anderson, USA

    Susan Anderson, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • JP

    JP

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Lombana, Spain

    Lombana, Spain

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Greg Heydet, USA

    Greg Heydet, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Anna Barrow, UK

    Anna Barrow, UK

  • Jay Epstein, USA

    Jay Epstein, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Jon Newsome, USA

    Jon Newsome, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login