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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Anita Forte, USA

    Anita Forte, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Phil Rossall, UK

    Phil Rossall, UK

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Jean Waters, UK

    Jean Waters, UK

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Lee Millard, England

    Lee Millard, England

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Animesh Kumar, India

    Animesh Kumar, India

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Susan Keldani, USA

    Susan Keldani, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Steve

    Steve

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Zabun Nassar, England

    Zabun Nassar, England

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jack Buzby, USA

    Jack Buzby, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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