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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Olga, Argentina

    Olga, Argentina

  • Purningam Jacob, India

    Purningam Jacob, India

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Rosie Riley, USA

    Rosie Riley, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Lombana, Spain

    Lombana, Spain

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Bayley, Australia

    Bayley, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Phil Rossall, UK

    Phil Rossall, UK

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Anita Forte, USA

    Anita Forte, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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