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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Bayley, Australia

    Bayley, Australia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Anna Barrow, UK

    Anna Barrow, UK

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Dick Dayton, USA

    Dick Dayton, USA

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • John Russo, USA

    John Russo, USA
    final3878

  • David Solomon, UK

    David Solomon, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Susan Anderson, USA

    Susan Anderson, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Greg Heydet, USA

    Greg Heydet, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • David Bishop, UK

    David Bishop, UK

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Glen Elison, USA

    Glen Elison, USA

  • John Dinon, Australia

    John Dinon, Australia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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