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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jay Epstein, USA

    Jay Epstein, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jon Newsome, USA

    Jon Newsome, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Jean

    Jean
    jean

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Purningam Jacob, India

    Purningam Jacob, India

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Steve

    Steve

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Sally Pauls, USA

    Sally Pauls, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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