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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Jean Waters, UK

    Jean Waters, UK

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Mark Miller, UK

    Mark Miller, UK

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Bob Simonds, USA

    Bob Simonds, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Art Eggert, USA

    Art Eggert, USA

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Bayley, Australia

    Bayley, Australia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jason Goodman, USA

    Jason Goodman, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Glen Elison, USA

    Glen Elison, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • David Bishop, UK

    David Bishop, UK

  • Ian Gale, Australia

    Ian Gale, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Anna Barrow, UK

    Anna Barrow, UK

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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