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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Rob Tison, USA

    Rob Tison, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Len Johnrose, England

    Len Johnrose, England

  • Liam Dwyer, England

    Liam Dwyer, England

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Bayley, Australia

    Bayley, Australia

  • Lee Millard, England

    Lee Millard, England

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Animesh Kumar, India

    Animesh Kumar, India

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Denis Blais, Canada

    Denis Blais, Canada

  • Jean

    Jean
    jean

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Jean Waters, UK

    Jean Waters, UK

  • Olga, Argentina

    Olga, Argentina

  • David Bishop, UK

    David Bishop, UK

  • Fayette Underwood, USA

    Fayette Underwood, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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