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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Purningam Jacob, India

    Purningam Jacob, India

  • Lee Millard, England

    Lee Millard, England

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Alex, Argentina

    Alex, Argentina

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jason Goodman, USA

    Jason Goodman, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Philip Brindle, England

    Philip Brindle, England

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Olga, Argentina

    Olga, Argentina

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • David Watson, Scotland

    David Watson, Scotland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Bayley, Australia

    Bayley, Australia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Glen Elison, USA

    Glen Elison, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Len Johnrose, England

    Len Johnrose, England

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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