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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Anita Forte, USA

    Anita Forte, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Jean Waters, UK

    Jean Waters, UK

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Michael Lee, Australia

    Michael Lee, Australia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • John Sweeney, USA

    John Sweeney, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • John Russo, USA

    John Russo, USA
    final3878

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Ali Var, Turkey

    Ali Var, Turkey

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Lee Millard, England

    Lee Millard, England

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Len Johnrose, England

    Len Johnrose, England

  • Liam Dwyer, England

    Liam Dwyer, England

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Jon Newsome, USA

    Jon Newsome, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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