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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • David Solomon, UK

    David Solomon, UK

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Anita Forte, USA

    Anita Forte, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • John Dinon, Australia

    John Dinon, Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Denis Blais, Canada

    Denis Blais, Canada

  • Art Eggert, USA

    Art Eggert, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jason Goodman, USA

    Jason Goodman, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Mike Cels, Canada

    Mike Cels, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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