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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 12 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Len Johnrose, England

    Len Johnrose, England

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Sally Pauls, USA

    Sally Pauls, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Christian Bär, Germany

    Christian Bär, Germany

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • David Hall, USA

    David Hall, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Susan Anderson, USA

    Susan Anderson, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • JP

    JP

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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