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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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About

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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Susan Anderson, USA

    Susan Anderson, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Jack Buzby, USA

    Jack Buzby, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Frank Taylor, USA

    Frank Taylor, USA

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Mike Cels, Canada

    Mike Cels, Canada

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Willi Klein, UK

    Willi Klein, UK

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Jean Waters, UK

    Jean Waters, UK

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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