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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Sally Pauls, USA

    Sally Pauls, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Bayley, Australia

    Bayley, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Glen Elison, USA

    Glen Elison, USA

  • Phil Rossall, UK

    Phil Rossall, UK

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • John Sweeney, USA

    John Sweeney, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Ann Nicol, USA

    Ann Nicol, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • David Watson, Scotland

    David Watson, Scotland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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