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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Lombana, Spain

    Lombana, Spain

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Hollister

    Hollister
    hollister

  • Ali Var, Turkey

    Ali Var, Turkey

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Greg Heydet, USA

    Greg Heydet, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • David Hall, USA

    David Hall, USA

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Alex, Argentina

    Alex, Argentina

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Glen Elison, USA

    Glen Elison, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • John Dinon, Australia

    John Dinon, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • David Solomon, UK

    David Solomon, UK

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • JP

    JP

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Bob Simonds, USA

    Bob Simonds, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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