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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Staff
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Glen Elison, USA

    Glen Elison, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Steve

    Steve

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Olga, Argentina

    Olga, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Bayley, Australia

    Bayley, Australia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Art Eggert, USA

    Art Eggert, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Philip Brindle, England

    Philip Brindle, England

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Jack Buzby, USA

    Jack Buzby, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Dick Dayton, USA

    Dick Dayton, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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