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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • JP

    JP

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Anna Barrow, UK

    Anna Barrow, UK

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Philip Brindle, England

    Philip Brindle, England

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jon Newsome, USA

    Jon Newsome, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Bayley, Australia

    Bayley, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Jason Goodman, USA

    Jason Goodman, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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