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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
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About

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    • PALS and CALS Advisory Council
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Liam Dwyer, England

    Liam Dwyer, England

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Philip Brindle, England

    Philip Brindle, England

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Frank Taylor, USA

    Frank Taylor, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Animesh Kumar, India

    Animesh Kumar, India

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Hollister

    Hollister
    hollister

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • David Bishop, UK

    David Bishop, UK

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • David Watson, Scotland

    David Watson, Scotland

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Jean

    Jean
    jean

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Bob Simonds, USA

    Bob Simonds, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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