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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mike Cels, Canada

    Mike Cels, Canada

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Bayley, Australia

    Bayley, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • David Bishop, UK

    David Bishop, UK

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Jay Epstein, USA

    Jay Epstein, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Art Eggert, USA

    Art Eggert, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Liam Dwyer, England

    Liam Dwyer, England

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Olga, Argentina

    Olga, Argentina

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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