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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 12 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • David Hall, USA

    David Hall, USA

  • David Solomon, UK

    David Solomon, UK

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Mike Small, UK

    Mike Small, UK

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Zabun Nassar, England

    Zabun Nassar, England

  • Jay Epstein, USA

    Jay Epstein, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Glen Elison, USA

    Glen Elison, USA

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Mark Miller, UK

    Mark Miller, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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