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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Willi Klein, UK

    Willi Klein, UK

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Sally Pauls, USA

    Sally Pauls, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Lombana, Spain

    Lombana, Spain

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Rob Tison, USA

    Rob Tison, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Rosie Riley, USA

    Rosie Riley, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Ann Nicol, USA

    Ann Nicol, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Mark Miller, UK

    Mark Miller, UK

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Anna Barrow, UK

    Anna Barrow, UK

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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