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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Christian Bär, Germany

    Christian Bär, Germany

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Greg Heydet, USA

    Greg Heydet, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Jon Newsome, USA

    Jon Newsome, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • David Watson, Scotland

    David Watson, Scotland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Zabun Nassar, England

    Zabun Nassar, England

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jason Goodman, USA

    Jason Goodman, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Timmy, Belgium

    Timmy, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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