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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • John Dinon, Australia

    John Dinon, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Anita Forte, USA

    Anita Forte, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • John Russo, USA

    John Russo, USA
    final3878

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jean Waters, UK

    Jean Waters, UK

  • JP

    JP

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Animesh Kumar, India

    Animesh Kumar, India

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Mike Small, UK

    Mike Small, UK

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Phil Rossall, UK

    Phil Rossall, UK

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Mark Miller, UK

    Mark Miller, UK

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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