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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 7 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Rob Tison, USA

    Rob Tison, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Lee Millard, England

    Lee Millard, England

  • John Russo, USA

    John Russo, USA
    final3878

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Daniel Hare, USA

    Daniel Hare, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Anna Barrow, UK

    Anna Barrow, UK

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • David Bishop, UK

    David Bishop, UK

  • Jason Goodman, USA

    Jason Goodman, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Liam Dwyer, England

    Liam Dwyer, England

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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