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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Anita Forte, USA

    Anita Forte, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Bayley, Australia

    Bayley, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Susan Anderson, USA

    Susan Anderson, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Phil Rossall, UK

    Phil Rossall, UK

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Olga, Argentina

    Olga, Argentina

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Daniel Hare, USA

    Daniel Hare, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Susan Keldani, USA

    Susan Keldani, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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