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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Anna Barrow, UK

    Anna Barrow, UK

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Lombana, Spain

    Lombana, Spain

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Steve

    Steve

  • Timmy, Belgium

    Timmy, Belgium

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Sally Pauls, USA

    Sally Pauls, USA

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • JP

    JP

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Liam Dwyer, England

    Liam Dwyer, England

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Greg Heydet, USA

    Greg Heydet, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Lee Millard, England

    Lee Millard, England

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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