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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Ann Nicol, USA

    Ann Nicol, USA

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • David Bishop, UK

    David Bishop, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Lombana, Spain

    Lombana, Spain

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Art Eggert, USA

    Art Eggert, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Philip Brindle, England

    Philip Brindle, England

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Rob Tison, USA

    Rob Tison, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Bayley, Australia

    Bayley, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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