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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Susan Keldani, USA

    Susan Keldani, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Jason Goodman, USA

    Jason Goodman, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Daniel Hare, USA

    Daniel Hare, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Ian Gale, Australia

    Ian Gale, Australia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Christian Bär, Germany

    Christian Bär, Germany

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Paul Launer, USA

    Paul Launer, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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