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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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    • Finance Committee
  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Len Johnrose, England

    Len Johnrose, England

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Anna Barrow, UK

    Anna Barrow, UK

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Jean

    Jean
    jean

  • Phil Rossall, UK

    Phil Rossall, UK

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Philip Brindle, England

    Philip Brindle, England

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Animesh Kumar, India

    Animesh Kumar, India

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Jean Waters, UK

    Jean Waters, UK

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • John Russo, USA

    John Russo, USA
    final3878

  • Hollister

    Hollister
    hollister

  • Michael Lee, Australia

    Michael Lee, Australia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Jay Epstein, USA

    Jay Epstein, USA

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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