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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Alex, Argentina

    Alex, Argentina

  • Purningam Jacob, India

    Purningam Jacob, India

  • Dick Dayton, USA

    Dick Dayton, USA

  • Olga, Argentina

    Olga, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Rosie Riley, USA

    Rosie Riley, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • David Hall, USA

    David Hall, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • David Bishop, UK

    David Bishop, UK

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Bayley, Australia

    Bayley, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Animesh Kumar, India

    Animesh Kumar, India

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • David Solomon, UK

    David Solomon, UK

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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