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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Susan Anderson, USA

    Susan Anderson, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Steve

    Steve

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • David Watson, Scotland

    David Watson, Scotland

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Lee Millard, England

    Lee Millard, England

  • Greg Heydet, USA

    Greg Heydet, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Paul Launer, USA

    Paul Launer, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Zabun Nassar, England

    Zabun Nassar, England

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • JP

    JP

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Rob Tison, USA

    Rob Tison, USA

  • Hollister

    Hollister
    hollister

  • Jean Waters, UK

    Jean Waters, UK

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Purningam Jacob, India

    Purningam Jacob, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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