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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

View Calendar

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Mark Miller, UK

    Mark Miller, UK

  • Bob Simonds, USA

    Bob Simonds, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Lombana, Spain

    Lombana, Spain

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Denis Blais, Canada

    Denis Blais, Canada

  • Alex, Argentina

    Alex, Argentina

  • David Hall, USA

    David Hall, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Jack Buzby, USA

    Jack Buzby, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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