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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Ian Gale, Australia

    Ian Gale, Australia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Steve

    Steve

  • Anita Forte, USA

    Anita Forte, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Liam Dwyer, England

    Liam Dwyer, England

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Dick Dayton, USA

    Dick Dayton, USA

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Lee Millard, England

    Lee Millard, England

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Willi Klein, UK

    Willi Klein, UK

  • John Russo, USA

    John Russo, USA
    final3878

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Daniel Hare, USA

    Daniel Hare, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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