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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Lee Millard, England

    Lee Millard, England

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Timmy, Belgium

    Timmy, Belgium

  • Art Eggert, USA

    Art Eggert, USA

  • Steve

    Steve

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jon Newsome, USA

    Jon Newsome, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Alex, Argentina

    Alex, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Anita Forte, USA

    Anita Forte, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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