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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
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About

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Upcoming Events

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Bob Simonds, USA

    Bob Simonds, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Bayley, Australia

    Bayley, Australia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Ian Gale, Australia

    Ian Gale, Australia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • JP

    JP

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Ann Nicol, USA

    Ann Nicol, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Lombana, Spain

    Lombana, Spain

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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