• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

@rachel

Profile

Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Mark Miller, UK

    Mark Miller, UK

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Len Johnrose, England

    Len Johnrose, England

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Daniel Hare, USA

    Daniel Hare, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Alex, Argentina

    Alex, Argentina

  • Mike Cels, Canada

    Mike Cels, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login