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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Denis Blais, Canada

    Denis Blais, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Rob Tison, USA

    Rob Tison, USA

  • David Solomon, UK

    David Solomon, UK

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Mark Miller, UK

    Mark Miller, UK

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Bayley, Australia

    Bayley, Australia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • David Watson, Scotland

    David Watson, Scotland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Susan Anderson, USA

    Susan Anderson, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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