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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 7 months ago


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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Lee Millard, England

    Lee Millard, England

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Olga, Argentina

    Olga, Argentina

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Susan Anderson, USA

    Susan Anderson, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • David Bishop, UK

    David Bishop, UK

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Sally Pauls, USA

    Sally Pauls, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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