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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
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Upcoming Events

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

Dec 7
December 7 - December 8

Allied Professionals Forum

View Calendar

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Mike Small, UK

    Mike Small, UK

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Anita Forte, USA

    Anita Forte, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Timmy, Belgium

    Timmy, Belgium

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Lombana, Spain

    Lombana, Spain

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • David Watson, Scotland

    David Watson, Scotland

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Dick Dayton, USA

    Dick Dayton, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Philip Brindle, England

    Philip Brindle, England

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Greg Heydet, USA

    Greg Heydet, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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