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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Bayley, Australia

    Bayley, Australia

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Jay Epstein, USA

    Jay Epstein, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Willi Klein, UK

    Willi Klein, UK

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Lombana, Spain

    Lombana, Spain

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Michael Lee, Australia

    Michael Lee, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Rob Tison, USA

    Rob Tison, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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