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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Len Johnrose, England

    Len Johnrose, England

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Greg Heydet, USA

    Greg Heydet, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Art Eggert, USA

    Art Eggert, USA

  • David Bishop, UK

    David Bishop, UK

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Denis Blais, Canada

    Denis Blais, Canada

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Bayley, Australia

    Bayley, Australia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Jay Epstein, USA

    Jay Epstein, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Alex, Argentina

    Alex, Argentina

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Lombana, Spain

    Lombana, Spain

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Ali Var, Turkey

    Ali Var, Turkey

  • Susan Anderson, USA

    Susan Anderson, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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