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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • Research Directors Forum
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Jean

    Jean
    jean

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Susan Anderson, USA

    Susan Anderson, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Lee Millard, England

    Lee Millard, England

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Jason Goodman, USA

    Jason Goodman, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • John Dinon, Australia

    John Dinon, Australia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Paul Launer, USA

    Paul Launer, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Frank Taylor, USA

    Frank Taylor, USA

  • Jack Buzby, USA

    Jack Buzby, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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