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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Susan Anderson, USA

    Susan Anderson, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Rob Tison, USA

    Rob Tison, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • John Russo, USA

    John Russo, USA
    final3878

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Michael Lee, Australia

    Michael Lee, Australia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Liam Dwyer, England

    Liam Dwyer, England

  • Daniel Hare, USA

    Daniel Hare, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Lee Millard, England

    Lee Millard, England

  • Willi Klein, UK

    Willi Klein, UK

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Susan Keldani, USA

    Susan Keldani, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Art Eggert, USA

    Art Eggert, USA

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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