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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Willi Klein, UK

    Willi Klein, UK

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Anita Forte, USA

    Anita Forte, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Jon Newsome, USA

    Jon Newsome, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Len Johnrose, England

    Len Johnrose, England

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Frank Taylor, USA

    Frank Taylor, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Inta Grubb, Australia

    Inta Grubb, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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