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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Alex, Argentina

    Alex, Argentina

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Mike Small, UK

    Mike Small, UK

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Zabun Nassar, England

    Zabun Nassar, England

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Lee Millard, England

    Lee Millard, England

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Frank Taylor, USA

    Frank Taylor, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Rosie Riley, USA

    Rosie Riley, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Bayley, Australia

    Bayley, Australia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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