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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Frank Taylor, USA

    Frank Taylor, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Anna Barrow, UK

    Anna Barrow, UK

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Jean Waters, UK

    Jean Waters, UK

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Liam Dwyer, England

    Liam Dwyer, England

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Alex, Argentina

    Alex, Argentina

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Michael Lee, Australia

    Michael Lee, Australia

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • John Russo, USA

    John Russo, USA
    final3878

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jason Goodman, USA

    Jason Goodman, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Timmy, Belgium

    Timmy, Belgium

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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