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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Zabun Nassar, England

    Zabun Nassar, England

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Bob Simonds, USA

    Bob Simonds, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • David Hall, USA

    David Hall, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Hollister

    Hollister
    hollister

  • JP

    JP

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jean Waters, UK

    Jean Waters, UK

  • John Russo, USA

    John Russo, USA
    final3878

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Purningam Jacob, India

    Purningam Jacob, India

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Sally Pauls, USA

    Sally Pauls, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Len Johnrose, England

    Len Johnrose, England

  • Willi Klein, UK

    Willi Klein, UK

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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