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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 7 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Purningam Jacob, India

    Purningam Jacob, India

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Glen Elison, USA

    Glen Elison, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Sally Pauls, USA

    Sally Pauls, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jack Buzby, USA

    Jack Buzby, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Jean Waters, UK

    Jean Waters, UK

  • Mike Cels, Canada

    Mike Cels, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Bayley, Australia

    Bayley, Australia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jean

    Jean
    jean

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Steve

    Steve

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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