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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Daniel Hare, USA

    Daniel Hare, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Rob Tison, USA

    Rob Tison, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Liam Dwyer, England

    Liam Dwyer, England

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Animesh Kumar, India

    Animesh Kumar, India

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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