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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Willi Klein, UK

    Willi Klein, UK

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Anita Forte, USA

    Anita Forte, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Olga, Argentina

    Olga, Argentina

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Frank Taylor, USA

    Frank Taylor, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Denis Blais, Canada

    Denis Blais, Canada

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Anna Barrow, UK

    Anna Barrow, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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