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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Phil Rossall, UK

    Phil Rossall, UK

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Jack Buzby, USA

    Jack Buzby, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Len Johnrose, England

    Len Johnrose, England

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Sally Pauls, USA

    Sally Pauls, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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