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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Art Eggert, USA

    Art Eggert, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • David Solomon, UK

    David Solomon, UK

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Ali Var, Turkey

    Ali Var, Turkey

  • Daniel Hare, USA

    Daniel Hare, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • John Dinon, Australia

    John Dinon, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Frank Taylor, USA

    Frank Taylor, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Anna Barrow, UK

    Anna Barrow, UK

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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