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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • John Dinon, Australia

    John Dinon, Australia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Hollister

    Hollister
    hollister

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Jon Newsome, USA

    Jon Newsome, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Denis Blais, Canada

    Denis Blais, Canada

  • Dick Dayton, USA

    Dick Dayton, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Timmy, Belgium

    Timmy, Belgium

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Philip Brindle, England

    Philip Brindle, England

  • John Sweeney, USA

    John Sweeney, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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