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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

View Calendar

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • David Bishop, UK

    David Bishop, UK

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Philip Brindle, England

    Philip Brindle, England

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Phil Rossall, UK

    Phil Rossall, UK

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Susan Anderson, USA

    Susan Anderson, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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