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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Daniel Hare, USA

    Daniel Hare, USA

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Susan Keldani, USA

    Susan Keldani, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Alex, Argentina

    Alex, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Denis Blais, Canada

    Denis Blais, Canada

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Ann Nicol, USA

    Ann Nicol, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • John Dinon, Australia

    John Dinon, Australia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Jon Newsome, USA

    Jon Newsome, USA

  • Hollister

    Hollister
    hollister

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Lombana, Spain

    Lombana, Spain

  • Rob Tison, USA

    Rob Tison, USA

  • Ian Gale, Australia

    Ian Gale, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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