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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Daniel Hare, USA

    Daniel Hare, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Susan Anderson, USA

    Susan Anderson, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Bayley, Australia

    Bayley, Australia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • John Russo, USA

    John Russo, USA
    final3878

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Graham Johnson, Australia

    Graham Johnson, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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