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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Hollister

    Hollister
    hollister

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Rosie Riley, USA

    Rosie Riley, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Ian Gale, Australia

    Ian Gale, Australia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Christian Bär, Germany

    Christian Bär, Germany

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Animesh Kumar, India

    Animesh Kumar, India

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jean Waters, UK

    Jean Waters, UK

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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