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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Steve

    Steve

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Glen Elison, USA

    Glen Elison, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Jay Epstein, USA

    Jay Epstein, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Jon Newsome, USA

    Jon Newsome, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Purningam Jacob, India

    Purningam Jacob, India

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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