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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Art Eggert, USA

    Art Eggert, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Len Johnrose, England

    Len Johnrose, England

  • Greg Heydet, USA

    Greg Heydet, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • David Hall, USA

    David Hall, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Mike Cels, Canada

    Mike Cels, Canada

  • JP

    JP

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Denis Blais, Canada

    Denis Blais, Canada

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Willi Klein, UK

    Willi Klein, UK

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • David Watson, Scotland

    David Watson, Scotland

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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