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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Rob Tison, USA

    Rob Tison, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Alex, Argentina

    Alex, Argentina

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • David Solomon, UK

    David Solomon, UK

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Art Eggert, USA

    Art Eggert, USA

  • Frank Taylor, USA

    Frank Taylor, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Lee Millard, England

    Lee Millard, England

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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