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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
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  • March of Faces
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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
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Upcoming Events

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

Dec 7
December 7 - December 8

Allied Professionals Forum

View Calendar

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Philip Brindle, England

    Philip Brindle, England

  • Lee Millard, England

    Lee Millard, England

  • Anita Forte, USA

    Anita Forte, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Rosie Riley, USA

    Rosie Riley, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Dick Dayton, USA

    Dick Dayton, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Glen Elison, USA

    Glen Elison, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Jon Newsome, USA

    Jon Newsome, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • John Russo, USA

    John Russo, USA
    final3878

  • Animesh Kumar, India

    Animesh Kumar, India

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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