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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Phil Rossall, UK

    Phil Rossall, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • David Bishop, UK

    David Bishop, UK

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jon Newsome, USA

    Jon Newsome, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Dick Dayton, USA

    Dick Dayton, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Anita Forte, USA

    Anita Forte, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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