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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Daniel Hare, USA

    Daniel Hare, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Ali Var, Turkey

    Ali Var, Turkey

  • Philip Brindle, England

    Philip Brindle, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Jon Newsome, USA

    Jon Newsome, USA

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Olga, Argentina

    Olga, Argentina

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Liam Dwyer, England

    Liam Dwyer, England

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Jay Epstein, USA

    Jay Epstein, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Denis Blais, Canada

    Denis Blais, Canada

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • JP

    JP

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Jason Goodman, USA

    Jason Goodman, USA

  • Greg Heydet, USA

    Greg Heydet, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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