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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Len Johnrose, England

    Len Johnrose, England

  • Hollister

    Hollister
    hollister

  • Art Eggert, USA

    Art Eggert, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • John Russo, USA

    John Russo, USA
    final3878

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Rob Tison, USA

    Rob Tison, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Denis Blais, Canada

    Denis Blais, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Lee Millard, England

    Lee Millard, England

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Anita Forte, USA

    Anita Forte, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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