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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Advocacy and Public Policy Forum
    • Research Directors Forum
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    • Finance Committee
  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Mike Small, UK

    Mike Small, UK

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Philip Brindle, England

    Philip Brindle, England

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Mike Cels, Canada

    Mike Cels, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Rosie Riley, USA

    Rosie Riley, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Anita Forte, USA

    Anita Forte, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Sally Pauls, USA

    Sally Pauls, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Purningam Jacob, India

    Purningam Jacob, India

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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