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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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  • Staff
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Phil Rossall, UK

    Phil Rossall, UK

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Jean Waters, UK

    Jean Waters, UK

  • Lombana, Spain

    Lombana, Spain

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • John Russo, USA

    John Russo, USA
    final3878

  • JP

    JP

  • Rosie Riley, USA

    Rosie Riley, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Rob Tison, USA

    Rob Tison, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Len Johnrose, England

    Len Johnrose, England

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Anna Barrow, UK

    Anna Barrow, UK

  • Ian Gale, Australia

    Ian Gale, Australia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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