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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Jay Epstein, USA

    Jay Epstein, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • David Watson, Scotland

    David Watson, Scotland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • John Sweeney, USA

    John Sweeney, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Jean Waters, UK

    Jean Waters, UK

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Lee Millard, England

    Lee Millard, England

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Mark Miller, UK

    Mark Miller, UK

  • Purningam Jacob, India

    Purningam Jacob, India

  • Lombana, Spain

    Lombana, Spain

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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