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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Hollister

    Hollister
    hollister

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Glen Elison, USA

    Glen Elison, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Frank Taylor, USA

    Frank Taylor, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • John Sweeney, USA

    John Sweeney, USA

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Timmy, Belgium

    Timmy, Belgium

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Olga, Argentina

    Olga, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Christian Bär, Germany

    Christian Bär, Germany

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Jean

    Jean
    jean

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Paul Launer, USA

    Paul Launer, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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