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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Len Johnrose, England

    Len Johnrose, England

  • Liam Dwyer, England

    Liam Dwyer, England

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Jason Goodman, USA

    Jason Goodman, USA

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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