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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
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Upcoming Events

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

View Calendar

  • Susan Anderson, USA

    Susan Anderson, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • John Sweeney, USA

    John Sweeney, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Len Johnrose, England

    Len Johnrose, England

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Mike Small, UK

    Mike Small, UK

  • Denis Blais, Canada

    Denis Blais, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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