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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Denis Blais, Canada

    Denis Blais, Canada

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Bayley, Australia

    Bayley, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Ann Nicol, USA

    Ann Nicol, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Bob Simonds, USA

    Bob Simonds, USA

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Art Eggert, USA

    Art Eggert, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Liam Dwyer, England

    Liam Dwyer, England

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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