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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • David Hall, USA

    David Hall, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

  • Jean

    Jean
    jean

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jay Epstein, USA

    Jay Epstein, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Christian Bär, Germany

    Christian Bär, Germany

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Daniel Hare, USA

    Daniel Hare, USA

  • JP

    JP

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Denis Blais, Canada

    Denis Blais, Canada

  • Jean Waters, UK

    Jean Waters, UK

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Greg Heydet, USA

    Greg Heydet, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Paul Launer, USA

    Paul Launer, USA

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Sally Pauls, USA

    Sally Pauls, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Steve

    Steve

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Bob Simonds, USA

    Bob Simonds, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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