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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

View Calendar

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Phil Rossall, UK

    Phil Rossall, UK

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Rob Tison, USA

    Rob Tison, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • David Hall, USA

    David Hall, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Bayley, Australia

    Bayley, Australia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • JP

    JP

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Zabun Nassar, England

    Zabun Nassar, England

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Olga, Argentina

    Olga, Argentina

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Willi Klein, UK

    Willi Klein, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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