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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Anita Forte, USA

    Anita Forte, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Greg Heydet, USA

    Greg Heydet, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Jon Newsome, USA

    Jon Newsome, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Sally Pauls, USA

    Sally Pauls, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Timmy, Belgium

    Timmy, Belgium

  • Daniel Hare, USA

    Daniel Hare, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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