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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Daniel Hare, USA

    Daniel Hare, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Timmy, Belgium

    Timmy, Belgium

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Mark Miller, UK

    Mark Miller, UK

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Glen Elison, USA

    Glen Elison, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Art Eggert, USA

    Art Eggert, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Christian Bär, Germany

    Christian Bär, Germany

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Paul Launer, USA

    Paul Launer, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Liam Dwyer, England

    Liam Dwyer, England

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Lee Millard, England

    Lee Millard, England

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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