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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Purningam Jacob, India

    Purningam Jacob, India

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • David Solomon, UK

    David Solomon, UK

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Jean Waters, UK

    Jean Waters, UK

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Jay Epstein, USA

    Jay Epstein, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Liam Dwyer, England

    Liam Dwyer, England

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Steve

    Steve

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Olga, Argentina

    Olga, Argentina

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Susan Anderson, USA

    Susan Anderson, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • JP

    JP

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Christian Bär, Germany

    Christian Bär, Germany

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Denis Blais, Canada

    Denis Blais, Canada

  • Anna Barrow, UK

    Anna Barrow, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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