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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • David Hall, USA

    David Hall, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Sally Pauls, USA

    Sally Pauls, USA

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Daniel Hare, USA

    Daniel Hare, USA

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Paul Launer, USA

    Paul Launer, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Steve

    Steve

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Jason Goodman, USA

    Jason Goodman, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Glen Elison, USA

    Glen Elison, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Alex, Argentina

    Alex, Argentina

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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