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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • David Hall, USA

    David Hall, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Art Eggert, USA

    Art Eggert, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Lee Millard, England

    Lee Millard, England

  • Mike Small, UK

    Mike Small, UK

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Jason Goodman, USA

    Jason Goodman, USA

  • Jean

    Jean
    jean

  • Paul Launer, USA

    Paul Launer, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Rob Tison, USA

    Rob Tison, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Olga, Argentina

    Olga, Argentina

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Brian Lovell, Australia

    Brian Lovell, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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