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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • John Russo, USA

    John Russo, USA
    final3878

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Anita Forte, USA

    Anita Forte, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Bob Simonds, USA

    Bob Simonds, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Susan Anderson, USA

    Susan Anderson, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Glen Elison, USA

    Glen Elison, USA

  • Jean

    Jean
    jean

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Liam Dwyer, England

    Liam Dwyer, England

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Susan Keldani, USA

    Susan Keldani, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • JP

    JP

  • Timmy, Belgium

    Timmy, Belgium

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Lombana, Spain

    Lombana, Spain

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Anna Barrow, UK

    Anna Barrow, UK

  • Purningam Jacob, India

    Purningam Jacob, India

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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