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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • David Watson, Scotland

    David Watson, Scotland

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • David Bishop, UK

    David Bishop, UK

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Phil Rossall, UK

    Phil Rossall, UK

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Len Johnrose, England

    Len Johnrose, England

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Sally Pauls, USA

    Sally Pauls, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Animesh Kumar, India

    Animesh Kumar, India

  • Christian Bär, Germany

    Christian Bär, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Alex, Argentina

    Alex, Argentina

  • Ann Nicol, USA

    Ann Nicol, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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