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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

View Calendar

  • Susan Keldani, USA

    Susan Keldani, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Paul Launer, USA

    Paul Launer, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Olga, Argentina

    Olga, Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Liam Dwyer, England

    Liam Dwyer, England

  • Hollister

    Hollister
    hollister

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Len Johnrose, England

    Len Johnrose, England

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Ian Gale, Australia

    Ian Gale, Australia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • David Bishop, UK

    David Bishop, UK

  • Daniel Hare, USA

    Daniel Hare, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Jack Buzby, USA

    Jack Buzby, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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