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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 12 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Ian Gale, Australia

    Ian Gale, Australia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Mike Small, UK

    Mike Small, UK

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Lombana, Spain

    Lombana, Spain

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Ann Nicol, USA

    Ann Nicol, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • John Dinon, Australia

    John Dinon, Australia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • David Watson, Scotland

    David Watson, Scotland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Len Johnrose, England

    Len Johnrose, England

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Bob Spurrier, USA

    Bob Spurrier, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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