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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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About

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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Christian Bär, Germany

    Christian Bär, Germany

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Jean Waters, UK

    Jean Waters, UK

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • John Sweeney, USA

    John Sweeney, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Bayley, Australia

    Bayley, Australia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Hollister

    Hollister
    hollister

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • David Solomon, UK

    David Solomon, UK

  • Art Eggert, USA

    Art Eggert, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Denis Blais, Canada

    Denis Blais, Canada

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • David Watson, Scotland

    David Watson, Scotland

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Willi Klein, UK

    Willi Klein, UK

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Paul Launer, USA

    Paul Launer, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Susan Keldani, USA

    Susan Keldani, USA

  • JP

    JP

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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