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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Rob Tison, USA

    Rob Tison, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Lombana, Spain

    Lombana, Spain

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Ian Roberts, Australia

    Ian Roberts, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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