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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Jon Newsome, USA

    Jon Newsome, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Art Eggert, USA

    Art Eggert, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Mike Small, UK

    Mike Small, UK

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Jason Goodman, USA

    Jason Goodman, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Susan Anderson, USA

    Susan Anderson, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jean Waters, UK

    Jean Waters, UK

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Hollister

    Hollister
    hollister

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Michael Lee, Australia

    Michael Lee, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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