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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Ian Gale, Australia

    Ian Gale, Australia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mike Cels, Canada

    Mike Cels, Canada

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Steve

    Steve

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Jay Epstein, USA

    Jay Epstein, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • David Hall, USA

    David Hall, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Bayley, Australia

    Bayley, Australia

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Philip Brindle, England

    Philip Brindle, England

  • John Russo, USA

    John Russo, USA
    final3878

  • Jean Waters, UK

    Jean Waters, UK

  • JP

    JP

  • Art Eggert, USA

    Art Eggert, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Susan Keldani, USA

    Susan Keldani, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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