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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

View Calendar

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Ian Gale, Australia

    Ian Gale, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Phil Rossall, UK

    Phil Rossall, UK

  • Glen Elison, USA

    Glen Elison, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Steve

    Steve

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Dick Dayton, USA

    Dick Dayton, USA

  • Lombana, Spain

    Lombana, Spain

  • Lee Millard, England

    Lee Millard, England

  • Bayley, Australia

    Bayley, Australia

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • John Sweeney, USA

    John Sweeney, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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