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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Dick Dayton, USA

    Dick Dayton, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Greg Heydet, USA

    Greg Heydet, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Jack Buzby, USA

    Jack Buzby, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Frank Taylor, USA

    Frank Taylor, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Mike Cels, Canada

    Mike Cels, Canada

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • David Bishop, UK

    David Bishop, UK

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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