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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

View Calendar

  • Anna Barrow, UK

    Anna Barrow, UK

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Bayley, Australia

    Bayley, Australia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Glen Elison, USA

    Glen Elison, USA

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Susan Anderson, USA

    Susan Anderson, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Sally Pauls, USA

    Sally Pauls, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Anita Forte, USA

    Anita Forte, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Christian Bär, Germany

    Christian Bär, Germany

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ali Var, Turkey

    Ali Var, Turkey

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Lee Millard, England

    Lee Millard, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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