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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 12 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Ali Var, Turkey

    Ali Var, Turkey

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • John Dinon, Australia

    John Dinon, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Ian Gale, Australia

    Ian Gale, Australia

  • Jean

    Jean
    jean

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • David Solomon, UK

    David Solomon, UK

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Alex, Argentina

    Alex, Argentina

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Art Eggert, USA

    Art Eggert, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Lombana, Spain

    Lombana, Spain

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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