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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

View Calendar

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Glen Elison, USA

    Glen Elison, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Denis Blais, Canada

    Denis Blais, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Art Eggert, USA

    Art Eggert, USA

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Mark Miller, UK

    Mark Miller, UK

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • JP

    JP

  • Bayley, Australia

    Bayley, Australia

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Lee Millard, England

    Lee Millard, England

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Lombana, Spain

    Lombana, Spain

  • David Hall, USA

    David Hall, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Graham Johnson, Australia

    Graham Johnson, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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