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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
  • History
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Upcoming Events

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

View Calendar

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Denis Blais, Canada

    Denis Blais, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Anita Forte, USA

    Anita Forte, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Greg Heydet, USA

    Greg Heydet, USA

  • JP

    JP

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Zabun Nassar, England

    Zabun Nassar, England

  • John Dinon, Australia

    John Dinon, Australia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Alex, Argentina

    Alex, Argentina

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • John Sweeney, USA

    John Sweeney, USA

  • Lombana, Spain

    Lombana, Spain

  • David Bishop, UK

    David Bishop, UK

  • Mike Small, UK

    Mike Small, UK

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Glen Elison, USA

    Glen Elison, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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