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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Liam Dwyer, England

    Liam Dwyer, England

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Dick Dayton, USA

    Dick Dayton, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Animesh Kumar, India

    Animesh Kumar, India

  • Mark Miller, UK

    Mark Miller, UK

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Jean

    Jean
    jean

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • John Dinon, Australia

    John Dinon, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • David Bishop, UK

    David Bishop, UK

  • Art Eggert, USA

    Art Eggert, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Mike Cels, Canada

    Mike Cels, Canada

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Paul Launer, USA

    Paul Launer, USA

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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