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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • History
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Jon Newsome, USA

    Jon Newsome, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Ian Gale, Australia

    Ian Gale, Australia

  • Willi Klein, UK

    Willi Klein, UK

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Jason Goodman, USA

    Jason Goodman, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • David Solomon, UK

    David Solomon, UK

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • John Sweeney, USA

    John Sweeney, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Jean Waters, UK

    Jean Waters, UK

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Mary Thomas, Australia

    Mary Thomas, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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