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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Ian Gale, Australia

    Ian Gale, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Christian Bär, Germany

    Christian Bär, Germany

  • Susan Anderson, USA

    Susan Anderson, USA

  • David Bishop, UK

    David Bishop, UK

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Purningam Jacob, India

    Purningam Jacob, India

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Jay Epstein, USA

    Jay Epstein, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Olga, Argentina

    Olga, Argentina

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Ann Nicol, USA

    Ann Nicol, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Steve

    Steve

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Art Eggert, USA

    Art Eggert, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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