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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Ian Gale, Australia

    Ian Gale, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Sally Pauls, USA

    Sally Pauls, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Dick Dayton, USA

    Dick Dayton, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Bayley, Australia

    Bayley, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • John Russo, USA

    John Russo, USA
    final3878

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Steve

    Steve

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Liam Dwyer, England

    Liam Dwyer, England

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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