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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Christian Bär, Germany

    Christian Bär, Germany

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Michael Lee, Australia

    Michael Lee, Australia

  • Anita Forte, USA

    Anita Forte, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Jean Waters, UK

    Jean Waters, UK

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Len Johnrose, England

    Len Johnrose, England

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Dick Dayton, USA

    Dick Dayton, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Mark Miller, UK

    Mark Miller, UK

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Jean

    Jean
    jean

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • John Sweeney, USA

    John Sweeney, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Animesh Kumar, India

    Animesh Kumar, India

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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