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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Jean

    Jean
    jean

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Steve

    Steve

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Susan Anderson, USA

    Susan Anderson, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Bob Simonds, USA

    Bob Simonds, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Paul Launer, USA

    Paul Launer, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Susan Keldani, USA

    Susan Keldani, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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