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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Dick Dayton, USA

    Dick Dayton, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
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  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Lee Millard, England

    Lee Millard, England

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Denis Blais, Canada

    Denis Blais, Canada

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jack Buzby, USA

    Jack Buzby, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Ann Nicol, USA

    Ann Nicol, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Mark Miller, UK

    Mark Miller, UK

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Mikey Stone, ALS

    Mikey Stone, ALS

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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