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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Rob Tison, USA

    Rob Tison, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Purningam Jacob, India

    Purningam Jacob, India

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Phil Rossall, UK

    Phil Rossall, UK

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Mike Cels, Canada

    Mike Cels, Canada

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Susan Keldani, USA

    Susan Keldani, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Frank Taylor, USA

    Frank Taylor, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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