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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

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About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

View Calendar

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Ali Var, Turkey

    Ali Var, Turkey

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Zabun Nassar, England

    Zabun Nassar, England

  • Michael Lee, Australia

    Michael Lee, Australia

  • Lombana, Spain

    Lombana, Spain

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Bayley, Australia

    Bayley, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • David Watson, Scotland

    David Watson, Scotland

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Jean

    Jean
    jean

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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