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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • Research Directors Forum
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Upcoming Events

Jun 25
1:00 pm - 2:00 pm ADT

The ALS Turbocharged Living Scale: A New Way to Measure What Matters

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Denis Blais, Canada

    Denis Blais, Canada

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Timmy, Belgium

    Timmy, Belgium

  • Mike Cels, Canada

    Mike Cels, Canada

  • David Hall, USA

    David Hall, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Willi Klein, UK

    Willi Klein, UK

  • Frank Taylor, USA

    Frank Taylor, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Olga, Argentina

    Olga, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Bob Simonds, USA

    Bob Simonds, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Dick Dayton, USA

    Dick Dayton, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Alex, Argentina

    Alex, Argentina

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Paul Launer, USA

    Paul Launer, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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