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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Phil Rossall, UK

    Phil Rossall, UK

  • Susan Keldani, USA

    Susan Keldani, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Anita Forte, USA

    Anita Forte, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Dick Dayton, USA

    Dick Dayton, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Jean Waters, UK

    Jean Waters, UK

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Anna Barrow, UK

    Anna Barrow, UK

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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