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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Philip Brindle, England

    Philip Brindle, England

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Jean

    Jean
    jean

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Purningam Jacob, India

    Purningam Jacob, India

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Hollister

    Hollister
    hollister

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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