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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 12 months ago


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Topics Started: 2

Replies Created: 0

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jean

    Jean
    jean

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Mike Small, UK

    Mike Small, UK

  • Jason Goodman, USA

    Jason Goodman, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Art Eggert, USA

    Art Eggert, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • David Watson, Scotland

    David Watson, Scotland

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Lombana, Spain

    Lombana, Spain

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Frank Taylor, USA

    Frank Taylor, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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