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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Christian Bär, Germany

    Christian Bär, Germany

  • Ian Gale, Australia

    Ian Gale, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Liam Dwyer, England

    Liam Dwyer, England

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Rob Tison, USA

    Rob Tison, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Jean Waters, UK

    Jean Waters, UK

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Michael Lee, Australia

    Michael Lee, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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