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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 12 months ago


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Topics Started: 2

Replies Created: 0

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Art Eggert, USA

    Art Eggert, USA

  • JP

    JP

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Lombana, Spain

    Lombana, Spain

  • Mike Cels, Canada

    Mike Cels, Canada

  • David Watson, Scotland

    David Watson, Scotland

  • Jack Buzby, USA

    Jack Buzby, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Rob Tison, USA

    Rob Tison, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ian Gale, Australia

    Ian Gale, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Timmy, Belgium

    Timmy, Belgium

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • David Bishop, UK

    David Bishop, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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