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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Dick Dayton, USA

    Dick Dayton, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Rob Tison, USA

    Rob Tison, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Anita Forte, USA

    Anita Forte, USA

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Purningam Jacob, India

    Purningam Jacob, India

  • Mike Small, UK

    Mike Small, UK

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • David Watson, Scotland

    David Watson, Scotland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Bayley, Australia

    Bayley, Australia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Philip Brindle, England

    Philip Brindle, England

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Jean

    Jean
    jean

  • Lee Millard, England

    Lee Millard, England

  • Willi Klein, UK

    Willi Klein, UK

  • Timmy, Belgium

    Timmy, Belgium

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Sally Pauls, USA

    Sally Pauls, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Anna Barrow, UK

    Anna Barrow, UK

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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