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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Michael Lee, Australia

    Michael Lee, Australia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Paul Launer, USA

    Paul Launer, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Jean

    Jean
    jean

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Ian Gale, Australia

    Ian Gale, Australia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Susan Anderson, USA

    Susan Anderson, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Jack Buzby, USA

    Jack Buzby, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Steve

    Steve

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Anita Forte, USA

    Anita Forte, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • John Dinon, Australia

    John Dinon, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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