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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • David Solomon, UK

    David Solomon, UK

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Timmy, Belgium

    Timmy, Belgium

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Mike Cels, Canada

    Mike Cels, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Daniel Hare, USA

    Daniel Hare, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Christian Bär, Germany

    Christian Bär, Germany

  • Frank Taylor, USA

    Frank Taylor, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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