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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Denis Blais, Canada

    Denis Blais, Canada

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Bayley, Australia

    Bayley, Australia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • David Hall, USA

    David Hall, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Zabun Nassar, England

    Zabun Nassar, England

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Hollister

    Hollister
    hollister

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Feng Gin Sun, China

    Feng Gin Sun, China

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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