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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Frank Taylor, USA

    Frank Taylor, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Daniel Hare, USA

    Daniel Hare, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Len Johnrose, England

    Len Johnrose, England

  • Lee Millard, England

    Lee Millard, England

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Zabun Nassar, England

    Zabun Nassar, England

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • David Solomon, UK

    David Solomon, UK

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Sally Pauls, USA

    Sally Pauls, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Bayley, Australia

    Bayley, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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