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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Liam Dwyer, England

    Liam Dwyer, England

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Hollister

    Hollister
    hollister

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Bob Simonds, USA

    Bob Simonds, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Greg Heydet, USA

    Greg Heydet, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Olga, Argentina

    Olga, Argentina

  • Jon Newsome, USA

    Jon Newsome, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Daniel Hare, USA

    Daniel Hare, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • David Solomon, UK

    David Solomon, UK

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • John Dinon, Australia

    John Dinon, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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