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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • JP

    JP

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Rob Tison, USA

    Rob Tison, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Olga, Argentina

    Olga, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Susan Anderson, USA

    Susan Anderson, USA

  • Zabun Nassar, England

    Zabun Nassar, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Lombana, Spain

    Lombana, Spain

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • John Sweeney, USA

    John Sweeney, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Anna Barrow, UK

    Anna Barrow, UK

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Denis Blais, Canada

    Denis Blais, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Daniel Hare, USA

    Daniel Hare, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Alex, Argentina

    Alex, Argentina

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • David Bishop, UK

    David Bishop, UK

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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