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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Michael Lee, Australia

    Michael Lee, Australia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Ali Var, Turkey

    Ali Var, Turkey

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • JP

    JP

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Mike Small, UK

    Mike Small, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Alex, Argentina

    Alex, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Denis Blais, Canada

    Denis Blais, Canada

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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