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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Jean Waters, UK

    Jean Waters, UK

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Hollister

    Hollister
    hollister

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Jack Buzby, USA

    Jack Buzby, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Ali Var, Turkey

    Ali Var, Turkey

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Willi Klein, UK

    Willi Klein, UK

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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