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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Ali Var, Turkey

    Ali Var, Turkey

  • Dick Dayton, USA

    Dick Dayton, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Ian Gale, Australia

    Ian Gale, Australia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Anita Forte, USA

    Anita Forte, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Zabun Nassar, England

    Zabun Nassar, England

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • David Hall, USA

    David Hall, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Len Johnrose, England

    Len Johnrose, England

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Phil Rossall, UK

    Phil Rossall, UK

  • Mike Cels, Canada

    Mike Cels, Canada

  • Timmy, Belgium

    Timmy, Belgium

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • JP

    JP

  • Willi Klein, UK

    Willi Klein, UK

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Rob Tison, USA

    Rob Tison, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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