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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Denis Blais, Canada

    Denis Blais, Canada

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Dick Dayton, USA

    Dick Dayton, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Glen Elison, USA

    Glen Elison, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Bob Simonds, USA

    Bob Simonds, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Willi Klein, UK

    Willi Klein, UK

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Paul Launer, USA

    Paul Launer, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Hollister

    Hollister
    hollister

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Steve

    Steve

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Rob Tison, USA

    Rob Tison, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Art Eggert, USA

    Art Eggert, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • JP

    JP

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Jon Newsome, USA

    Jon Newsome, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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