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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Phil Rossall, UK

    Phil Rossall, UK

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Liam Dwyer, England

    Liam Dwyer, England

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Jean Waters, UK

    Jean Waters, UK

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Art Eggert, USA

    Art Eggert, USA

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Steve

    Steve

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Lombana, Spain

    Lombana, Spain

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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