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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • John Sweeney, USA

    John Sweeney, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Rob Tison, USA

    Rob Tison, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Jean

    Jean
    jean

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Susan Anderson, USA

    Susan Anderson, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Hollister

    Hollister
    hollister

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Dick Dayton, USA

    Dick Dayton, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Art Eggert, USA

    Art Eggert, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • JP

    JP

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • David Hall, USA

    David Hall, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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