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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Ali Var, Turkey

    Ali Var, Turkey

  • Zabun Nassar, England

    Zabun Nassar, England

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • David Hall, USA

    David Hall, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Denis Blais, Canada

    Denis Blais, Canada

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Susan Anderson, USA

    Susan Anderson, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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