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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • David Bishop, UK

    David Bishop, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Animesh Kumar, India

    Animesh Kumar, India

  • Jon Newsome, USA

    Jon Newsome, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Mike Cels, Canada

    Mike Cels, Canada

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Art Eggert, USA

    Art Eggert, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Paul Launer, USA

    Paul Launer, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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