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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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  • Calendar of Events/Programs
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About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Steve

    Steve

  • Greg Heydet, USA

    Greg Heydet, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jason Goodman, USA

    Jason Goodman, USA

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Len Johnrose, England

    Len Johnrose, England

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Mike Cels, Canada

    Mike Cels, Canada

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Ian Gale, Australia

    Ian Gale, Australia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Purningam Jacob, India

    Purningam Jacob, India

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Debbie Craghill, USA

    Debbie Craghill, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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