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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Bob Simonds, USA

    Bob Simonds, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Glen Elison, USA

    Glen Elison, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Sally Pauls, USA

    Sally Pauls, USA

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Lombana, Spain

    Lombana, Spain

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Lee Millard, England

    Lee Millard, England

  • Jon Newsome, USA

    Jon Newsome, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Mike Cels, Canada

    Mike Cels, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Rosie Riley, USA

    Rosie Riley, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Ali Var, Turkey

    Ali Var, Turkey

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Mike Small, UK

    Mike Small, UK

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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