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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jean Waters, UK

    Jean Waters, UK

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Jay Epstein, USA

    Jay Epstein, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Zabun Nassar, England

    Zabun Nassar, England

  • Daniel Hare, USA

    Daniel Hare, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Animesh Kumar, India

    Animesh Kumar, India

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Alex, Argentina

    Alex, Argentina

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Steve

    Steve

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Bayley, Australia

    Bayley, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Hollister

    Hollister
    hollister

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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