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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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@rachel

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Registered: 12 years, 7 months ago


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Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jun 25
1:00 pm - 2:00 pm ADT

The ALS Turbocharged Living Scale: A New Way to Measure What Matters

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • David Watson, Scotland

    David Watson, Scotland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Sally Pauls, USA

    Sally Pauls, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • John Russo, USA

    John Russo, USA
    final3878

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Liam Dwyer, England

    Liam Dwyer, England

  • Greg Heydet, USA

    Greg Heydet, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Len Johnrose, England

    Len Johnrose, England

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Mike Small, UK

    Mike Small, UK

  • Lombana, Spain

    Lombana, Spain

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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