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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Jean

    Jean
    jean

  • Jay Epstein, USA

    Jay Epstein, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Willi Klein, UK

    Willi Klein, UK

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • John Sweeney, USA

    John Sweeney, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • David Watson, Scotland

    David Watson, Scotland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Bayley, Australia

    Bayley, Australia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Len Johnrose, England

    Len Johnrose, England

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Ian Gale, Australia

    Ian Gale, Australia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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