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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Anita Forte, USA

    Anita Forte, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • John Russo, USA

    John Russo, USA
    final3878

  • Frank Taylor, USA

    Frank Taylor, USA

  • Jason Goodman, USA

    Jason Goodman, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • John Dinon, Australia

    John Dinon, Australia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Susan Anderson, USA

    Susan Anderson, USA

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Alex, Argentina

    Alex, Argentina

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Hollister

    Hollister
    hollister

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Greg Heydet, USA

    Greg Heydet, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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