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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Jay Epstein, USA

    Jay Epstein, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Bob Simonds, USA

    Bob Simonds, USA

  • Steve

    Steve

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Daniel Hare, USA

    Daniel Hare, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Lombana, Spain

    Lombana, Spain

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Anna Barrow, UK

    Anna Barrow, UK

  • JP

    JP

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Rosie Riley, USA

    Rosie Riley, USA

  • Alex, Argentina

    Alex, Argentina

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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