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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Glen Elison, USA

    Glen Elison, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Paul Launer, USA

    Paul Launer, USA

  • Alex, Argentina

    Alex, Argentina

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Jack Buzby, USA

    Jack Buzby, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • David Watson, Scotland

    David Watson, Scotland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Mary Thomas, Australia

    Mary Thomas, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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