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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Olga, Argentina

    Olga, Argentina

  • Art Eggert, USA

    Art Eggert, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Jack Buzby, USA

    Jack Buzby, USA

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Susan Keldani, USA

    Susan Keldani, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mark Miller, UK

    Mark Miller, UK

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Mike Cels, Canada

    Mike Cels, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • David Solomon, UK

    David Solomon, UK

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Lombana, Spain

    Lombana, Spain

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Timmy, Belgium

    Timmy, Belgium

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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