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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Phil Rossall, UK

    Phil Rossall, UK

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Ali Var, Turkey

    Ali Var, Turkey

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • David Hall, USA

    David Hall, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Glen Elison, USA

    Glen Elison, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Timmy, Belgium

    Timmy, Belgium

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Inta Grubb, Australia

    Inta Grubb, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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