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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • International Symposium

About

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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Susan Anderson, USA

    Susan Anderson, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Denis Blais, Canada

    Denis Blais, Canada

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Anita Forte, USA

    Anita Forte, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • David Hall, USA

    David Hall, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Timmy, Belgium

    Timmy, Belgium

  • Sally Pauls, USA

    Sally Pauls, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Christian Bär, Germany

    Christian Bär, Germany

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Olga, Argentina

    Olga, Argentina

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Philip Brindle, England

    Philip Brindle, England

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Mark Miller, UK

    Mark Miller, UK

  • Purningam Jacob, India

    Purningam Jacob, India

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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