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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Jack Buzby, USA

    Jack Buzby, USA

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Daniel Hare, USA

    Daniel Hare, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • John Sweeney, USA

    John Sweeney, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Denis Blais, Canada

    Denis Blais, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Susan Keldani, USA

    Susan Keldani, USA

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Jean

    Jean
    jean

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Lombana, Spain

    Lombana, Spain

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Phil Rossall, UK

    Phil Rossall, UK

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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