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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

Dec 7
December 7 - December 8

Allied Professionals Forum

View Calendar

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • John Sweeney, USA

    John Sweeney, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Christian Bär, Germany

    Christian Bär, Germany

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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