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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Purningam Jacob, India

    Purningam Jacob, India

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jack Buzby, USA

    Jack Buzby, USA

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Art Eggert, USA

    Art Eggert, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Willi Klein, UK

    Willi Klein, UK

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Rosie Riley, USA

    Rosie Riley, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Jon Newsome, USA

    Jon Newsome, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • John Dinon, Australia

    John Dinon, Australia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Christian Bär, Germany

    Christian Bär, Germany

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Bob Simonds, USA

    Bob Simonds, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Greg Heydet, USA

    Greg Heydet, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Steve

    Steve

  • Ali Var, Turkey

    Ali Var, Turkey

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Paul Launer, USA

    Paul Launer, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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