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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • John Dinon, Australia

    John Dinon, Australia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • David Hall, USA

    David Hall, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jack Buzby, USA

    Jack Buzby, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Anita Forte, USA

    Anita Forte, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Mark Miller, UK

    Mark Miller, UK

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Susan Keldani, USA

    Susan Keldani, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • David Solomon, UK

    David Solomon, UK

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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