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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

View Calendar

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Sally Pauls, USA

    Sally Pauls, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Jack Buzby, USA

    Jack Buzby, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Denis Blais, Canada

    Denis Blais, Canada

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • David Watson, Scotland

    David Watson, Scotland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Mark Miller, UK

    Mark Miller, UK

  • Olga, Argentina

    Olga, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Ann Nicol, USA

    Ann Nicol, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Rob Tison, USA

    Rob Tison, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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