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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • David Solomon, UK

    David Solomon, UK

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Phil Rossall, UK

    Phil Rossall, UK

  • Hollister

    Hollister
    hollister

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • John Dinon, Australia

    John Dinon, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Bob Simonds, USA

    Bob Simonds, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Willi Klein, UK

    Willi Klein, UK

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Michael Lee, Australia

    Michael Lee, Australia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • David Watson, Scotland

    David Watson, Scotland

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • JP

    JP

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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