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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Willi Klein, UK

    Willi Klein, UK

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Bayley, Australia

    Bayley, Australia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jack Buzby, USA

    Jack Buzby, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Phil Rossall, UK

    Phil Rossall, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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