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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Glen Elison, USA

    Glen Elison, USA

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • John Sweeney, USA

    John Sweeney, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Alex, Argentina

    Alex, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jean

    Jean
    jean

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • David Bishop, UK

    David Bishop, UK

  • Lee Millard, England

    Lee Millard, England

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dick Dayton, USA

    Dick Dayton, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Purningam Jacob, India

    Purningam Jacob, India

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Mike Small, UK

    Mike Small, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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