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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

View Calendar

  • Michael Lee, Australia

    Michael Lee, Australia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Paul Launer, USA

    Paul Launer, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Bob Simonds, USA

    Bob Simonds, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • David Bishop, UK

    David Bishop, UK

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Olga, Argentina

    Olga, Argentina

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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