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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • David Solomon, UK

    David Solomon, UK

  • Glen Elison, USA

    Glen Elison, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Michael Lee, Australia

    Michael Lee, Australia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Paul Launer, USA

    Paul Launer, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Willi Klein, UK

    Willi Klein, UK

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Zabun Nassar, England

    Zabun Nassar, England

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Rob Tison, USA

    Rob Tison, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Lee Millard, England

    Lee Millard, England

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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