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International Alliance of ALS/MND Associations

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Registered: 12 years, 8 months ago


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Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Timmy, Belgium

    Timmy, Belgium

  • Jack Buzby, USA

    Jack Buzby, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Glen Elison, USA

    Glen Elison, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Animesh Kumar, India

    Animesh Kumar, India

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Rob Tison, USA

    Rob Tison, USA

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Zabun Nassar, England

    Zabun Nassar, England

  • Willi Klein, UK

    Willi Klein, UK

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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