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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 12 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Steve

    Steve

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Lee Millard, England

    Lee Millard, England

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Jean

    Jean
    jean

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Art Eggert, USA

    Art Eggert, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Anna Barrow, UK

    Anna Barrow, UK

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Jason Goodman, USA

    Jason Goodman, USA

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • David Watson, Scotland

    David Watson, Scotland

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Daniel Hare, USA

    Daniel Hare, USA

  • Lombana, Spain

    Lombana, Spain

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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