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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

Replies Created: 0

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Steve

    Steve

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Liam Dwyer, England

    Liam Dwyer, England

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Ann Nicol, USA

    Ann Nicol, USA

  • Purningam Jacob, India

    Purningam Jacob, India

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Animesh Kumar, India

    Animesh Kumar, India

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Anna Barrow, UK

    Anna Barrow, UK

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Philip Brindle, England

    Philip Brindle, England

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Alex, Argentina

    Alex, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Denis Blais, Canada

    Denis Blais, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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