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International Alliance of ALS/MND Associations

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@rachel

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Registered: 13 years ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

View Calendar

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Sally Pauls, USA

    Sally Pauls, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • JP

    JP

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Anita Forte, USA

    Anita Forte, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Jean

    Jean
    jean

  • Jean Waters, UK

    Jean Waters, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • John Sweeney, USA

    John Sweeney, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Susan Keldani, USA

    Susan Keldani, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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