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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Hollister

    Hollister
    hollister

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Timmy, Belgium

    Timmy, Belgium

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Alex, Argentina

    Alex, Argentina

  • Jay Epstein, USA

    Jay Epstein, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • David Solomon, UK

    David Solomon, UK

  • Animesh Kumar, India

    Animesh Kumar, India

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • David Watson, Scotland

    David Watson, Scotland

  • Christian Bär, Germany

    Christian Bär, Germany

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Ann Nicol, USA

    Ann Nicol, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Susan Keldani, USA

    Susan Keldani, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Feng Gin Sun, China

    Feng Gin Sun, China

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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