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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Susan Keldani, USA

    Susan Keldani, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Steve

    Steve

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Paul Launer, USA

    Paul Launer, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Zabun Nassar, England

    Zabun Nassar, England

  • Ali Var, Turkey

    Ali Var, Turkey

  • Len Johnrose, England

    Len Johnrose, England

  • Timmy, Belgium

    Timmy, Belgium

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jay Epstein, USA

    Jay Epstein, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • John Dinon, Australia

    John Dinon, Australia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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