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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

View Calendar

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Jean

    Jean
    jean

  • Christian Bär, Germany

    Christian Bär, Germany

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Greg Heydet, USA

    Greg Heydet, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Art Eggert, USA

    Art Eggert, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Bayley, Australia

    Bayley, Australia

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • David Watson, Scotland

    David Watson, Scotland

  • Anita Forte, USA

    Anita Forte, USA

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Willi Klein, UK

    Willi Klein, UK

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • David Solomon, UK

    David Solomon, UK

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Michael Lee, Australia

    Michael Lee, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Liam Dwyer, England

    Liam Dwyer, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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