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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Philip Brindle, England

    Philip Brindle, England

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Michael Lee, Australia

    Michael Lee, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Lombana, Spain

    Lombana, Spain

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • David Watson, Scotland

    David Watson, Scotland

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Chris McCauley, Canada

    Chris McCauley, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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