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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Sally Pauls, USA

    Sally Pauls, USA

  • JP

    JP

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Denis Blais, Canada

    Denis Blais, Canada

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jay Epstein, USA

    Jay Epstein, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • David Solomon, UK

    David Solomon, UK

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • David Bishop, UK

    David Bishop, UK

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • David Hall, USA

    David Hall, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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