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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Ann Nicol, USA

    Ann Nicol, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Bob Simonds, USA

    Bob Simonds, USA

  • David Solomon, UK

    David Solomon, UK

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Lombana, Spain

    Lombana, Spain

  • Lee Millard, England

    Lee Millard, England

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Steve

    Steve

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Timmy, Belgium

    Timmy, Belgium

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Rob Tison, USA

    Rob Tison, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Denis Blais, Canada

    Denis Blais, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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