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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Dick Dayton, USA

    Dick Dayton, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Denis Blais, Canada

    Denis Blais, Canada

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Susan Keldani, USA

    Susan Keldani, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Mark Miller, UK

    Mark Miller, UK

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Michael Lee, Australia

    Michael Lee, Australia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Zabun Nassar, England

    Zabun Nassar, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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