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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • David Solomon, UK

    David Solomon, UK

  • Michael Lee, Australia

    Michael Lee, Australia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Mike Small, UK

    Mike Small, UK

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Denis Blais, Canada

    Denis Blais, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Lombana, Spain

    Lombana, Spain

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Philip Brindle, England

    Philip Brindle, England

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Purningam Jacob, India

    Purningam Jacob, India

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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