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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 10 months ago


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Topics Started: 2

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Art Eggert, USA

    Art Eggert, USA

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Timmy, Belgium

    Timmy, Belgium

  • Paul Launer, USA

    Paul Launer, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Glen Elison, USA

    Glen Elison, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Phil Rossall, UK

    Phil Rossall, UK

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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