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International Alliance of ALS/MND Associations

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Admin

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Steve

    Steve

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Art Eggert, USA

    Art Eggert, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • David Watson, Scotland

    David Watson, Scotland

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Rosie Riley, USA

    Rosie Riley, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • David Hall, USA

    David Hall, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Mike Cels, Canada

    Mike Cels, Canada

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Timmy, Belgium

    Timmy, Belgium

  • Animesh Kumar, India

    Animesh Kumar, India

  • Jean

    Jean
    jean

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Christian Bär, Germany

    Christian Bär, Germany

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Mark Miller, UK

    Mark Miller, UK

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Lee Millard, England

    Lee Millard, England

  • Jon Newsome, USA

    Jon Newsome, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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