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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Greg Heydet, USA

    Greg Heydet, USA

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jack Buzby, USA

    Jack Buzby, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Ann Nicol, USA

    Ann Nicol, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Denis Blais, Canada

    Denis Blais, Canada

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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