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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Frank Taylor, USA

    Frank Taylor, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Michael Lee, Australia

    Michael Lee, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Glen Elison, USA

    Glen Elison, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Daniel Hare, USA

    Daniel Hare, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • David Solomon, UK

    David Solomon, UK

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Ian Roberts, Australia

    Ian Roberts, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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