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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Paul Launer, USA

    Paul Launer, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Len Johnrose, England

    Len Johnrose, England

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Jean

    Jean
    jean

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Jay Epstein, USA

    Jay Epstein, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Rob Tison, USA

    Rob Tison, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Frank Taylor, USA

    Frank Taylor, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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