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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 9 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • John Russo, USA

    John Russo, USA
    final3878

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Zabun Nassar, England

    Zabun Nassar, England

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Hollister

    Hollister
    hollister

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Rosie Riley, USA

    Rosie Riley, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Jon Newsome, USA

    Jon Newsome, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Lee Millard, England

    Lee Millard, England

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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