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International Alliance of ALS/MND Associations

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@rachel

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Registered: 12 years, 8 months ago


Forums

Topics Started: 2

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • John Russo, USA

    John Russo, USA
    final3878

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Lee Millard, England

    Lee Millard, England

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Rosie Riley, USA

    Rosie Riley, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Ian Gale, Australia

    Ian Gale, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Mark Miller, UK

    Mark Miller, UK

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Alex, Argentina

    Alex, Argentina

  • Philip Brindle, England

    Philip Brindle, England

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Liam Dwyer, England

    Liam Dwyer, England

  • David Watson, Scotland

    David Watson, Scotland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Daniel Hare, USA

    Daniel Hare, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Steve

    Steve

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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