• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • John Russo, USA

    John Russo, USA
    final3878

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Philip Brindle, England

    Philip Brindle, England

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Susan Anderson, USA

    Susan Anderson, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Anita Forte, USA

    Anita Forte, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Greg Heydet, USA

    Greg Heydet, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Jean Waters, UK

    Jean Waters, UK

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Phil Rossall, UK

    Phil Rossall, UK

  • Michael Lee, Australia

    Michael Lee, Australia

  • Paul Launer, USA

    Paul Launer, USA

  • David Solomon, UK

    David Solomon, UK

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Lee Millard, England

    Lee Millard, England

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login