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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Rob Tison, USA

    Rob Tison, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • David Watson, Scotland

    David Watson, Scotland

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Mark Miller, UK

    Mark Miller, UK

  • John Russo, USA

    John Russo, USA
    final3878

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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