• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Steve

    Steve

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Zabun Nassar, England

    Zabun Nassar, England

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • David Bishop, UK

    David Bishop, UK

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Rob Tison, USA

    Rob Tison, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Jay Epstein, USA

    Jay Epstein, USA

  • Lee Millard, England

    Lee Millard, England

  • Bayley, Australia

    Bayley, Australia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Len Johnrose, England

    Len Johnrose, England

  • Christian Bär, Germany

    Christian Bär, Germany

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login