• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Jay Epstein, USA

    Jay Epstein, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Greg Heydet, USA

    Greg Heydet, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Ann Nicol, USA

    Ann Nicol, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • David Solomon, UK

    David Solomon, UK

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • John Sweeney, USA

    John Sweeney, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • John Dinon, Australia

    John Dinon, Australia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Christian Bär, Germany

    Christian Bär, Germany

  • David Watson, Scotland

    David Watson, Scotland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Susan Keldani, USA

    Susan Keldani, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Ian Gale, Australia

    Ian Gale, Australia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login