• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 23
1:00 pm - 2:00 pm EDT

ALS Canada Webinar: Navigating Grief While Living with ALS

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Hollister

    Hollister
    hollister

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Jon Newsome, USA

    Jon Newsome, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Jean Waters, UK

    Jean Waters, UK

  • Greg Heydet, USA

    Greg Heydet, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Bayley, Australia

    Bayley, Australia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Alex, Argentina

    Alex, Argentina

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Ann Nicol, USA

    Ann Nicol, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Debbie Craghill, USA

    Debbie Craghill, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login