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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Dick Dayton, USA

    Dick Dayton, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Mike Small, UK

    Mike Small, UK

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Susan Anderson, USA

    Susan Anderson, USA

  • David Hall, USA

    David Hall, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
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  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Michael Lee, Australia

    Michael Lee, Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Rob Tison, USA

    Rob Tison, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
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  • David Bishop, UK

    David Bishop, UK

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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