Join the Alliance

To qualify for Full Membership, an organization must:

• Serve people with ALS/MND or related disorders with a focus on patient care, advocacy and/or research;
• Be chartered in their own country as a non-profit national or independent organization for at least 2 years;
• Have a legal constitution or by-laws;
• Be governed by a volunteer Board of Directors (however described), elected by and/or from the membership which includes people living with ALS/MND, carers, past carers, or people closely associated with the disease; and
• Prepare an annual financial statement.

Applicants for Full Membership must submit the following documents in English:

• Cover letter stating their reasons for wanting to become a member of the Alliance
• Proof of non-profit status in their country
• Copy of their constitution and/or by-laws
• List of names of the Board of Directors (however described) and Officers
• Mission or purpose statement of the organization
• Written financial statement of previous year’s income
• Copies of or weblinks to brochures and other materials (if not in English, then with some English translation)

The fee for Full Membership is either an amount equal to 0.2% of total annual income of the applicant organization or £100 (Pounds Sterling), whichever is greater. At the discretion of the Board of Trustees, fees can be waived or reduced for members that demonstrate need and make a request in writing.

Affiliate Membership in the Alliance falls within four categories:

1. Emerging Associations Affiliate: New ALS/MND Associations being established or recently chartered in own country as a non-profit organization (or status pending) by July 1^st of the current membership year.
2. Network Affiliate:
   1. Regional non-profit networks of researchers and clinicians collaborating on ALS/MND
   2. Regional non-profit patient networks providing resources and support to people living with ALS/MND
   3. Non-profit neurological alliances advocating for and supporting people with neurological conditions
3. Education and Research Affiliate: Education or research institutes and centres dedicated to ALS/MND that operate within a non-profit entity such as a university.
4. Fiscal Sponsorship/Hosting Arrangement Affiliate: Organizations focused on ALS/MND that are not independently chartered and operate under the legal or administrative framework of a sponsoring or host organization.

To qualify for Affiliate Membership, an organization must:

• Serve people with ALS/MND or related disorders with a focus on patient care, advocacy and/or research;
• Be formally established in their own country as a non-profit organization, operate within a non-profit entity, or function under the legal or administrative structure of a sponsoring/host organization;
• Be governed directly or indirectly by a legal constitution or by-laws;
• Be governed by a volunteer Board of Directors (however described), elected by and/or from the membership that includes people living with ALS/MND, carers, past carers, or people closely associated with the disease; and
• Prepare an annual financial statement (where administratively relevant).

Applicants for Affiliate Membership must submit the following documents in English:

• Cover letter stating their reasons for wanting to become a member of the Alliance
• Proof of non-profit status in their country
• Copy of their constitution and/or by-laws
• List of names of the Board of Directors (however described) and Officers
• Mission or purpose statement of the organization
• Written financial statement of previous year’s income (only for Emerging Associations, if available, and Network Affiliates)
• Copies of or weblinks to brochures and other materials (if not in English, then with some English translation)

The following membership fees apply for 2026-2027:

• Emerging Associations Affiliate: 0.2% of member organization revenue for the previous year if relevant. May apply for a membership fee waiver.
• Network Affiliate: 0.1% of revenue for the previous year.  Less developed networks may apply for a membership fee waiver.
• Education and Research Affiliate: 0.2% if have own revenue, or minimum fee of £125 if have no direct income given operate within a non-profit entity such as a university.
• Fiscal Sponsorship/Hosting Arrangement Affiliate: minimum fee of £125.

Honorary Membership is awarded at the discretion of the Alliance’s Board of Trustees to individuals who have made significant contributions to the Alliance’s mission of a world free of ALS/MND. This may include former Board Members, Patrons, Staff, or Award recipients.