A primer for Physicians and Allied Health Professionals
Learning objectives:
- Describe the impact delivering news in ALS/MND can have on patients, caregivers and healthcare professionals
- Identify and address personal biases and perspectives on ALS/MND, death and dying
- Recognize and apply best practices in delivering news to people living with ALS/MND and their caregivers
- Respond to patient/caregiver distress when receiving the news
- Apply the A-L S-PIKES technique in clinical practice to improve confidence and comfort in delivering news
Resources
Also available in French:
Videos
ALS/MND Experience
Why was this program created
Clinical Pearls for AHPs in the “aftermath” period
Clinical Pearls – How to deliver an ALS/MND diagnosis
Clinical Pearls – What to discuss when delivering an ALS/MND diagnosis
When the emotions become overwhelming
Reasons for hope
“Know thyself” before the meeting
Mindfulness exercise
A-L-S-PIKES for AHPs
Caregiver experience 1
Caregiver experience 2
Note: These videos are also available in Spanish on the Asociación ELA Argentina’s website.