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International Alliance of ALS/MND Associations

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Who We Are

The International Alliance of ALS/MND Associations was founded in 1992. Today, we bring together more than 80 member organizations across the globe, united by a single vision: a world free of ALS/MND.

Everything we do is centred around the fundamental rights of people affected by ALS/MND — the belief that where you live should not determine the quality of care, support, and respect you receive.

We work alongside our members to raise awareness, coordinate research, advocate for equitable access to care and therapies, and ensure that under-represented communities are not left behind. Our global reach means that knowledge, tools, and best practices developed anywhere in the world can benefit people everywhere.

What Guides Us

Our Vision

A world free of ALS/MND

Our Aspiration

To drive global collaboration

Our Reach

We work globally, serving the entire ALS/MND community — people living with the disease, caregivers, clinicians, researchers, and the organizations that support them.

Our Purpose

Everything we do is oriented around one purpose: accelerating progress on the Fundamental Rights of people affected by ALS/MND, everywhere in the world.

Our Strategic Priorities

The Alliance’s 2026–2028 Strategy sets out six priorities that will guide our work over the coming years.

Bring focus to quality of life

We advocate more effectively to improve outcomes by understanding what people living with ALS/MND (PALS) and their community identify as important.

Include under-represented communities

By working alongside under-represented communities, we ensure meaningful inclusion across the globe so geography does not dictate destiny.

Increase awareness of ALS/MND

By raising awareness of ALS/MND and the Alliance, we strengthen our advocacy efforts at the global level, which supports our members at the local level.

Facilitate research coordination

By bringing people together and facilitating research coordination across the globe, we deepen our understanding of ALS/MND and accelerate research.

Leverage collective capacity

By coordinating with our members and partnering in strategic international collaborations, we leverage collective knowledge and resources — positioning the Alliance as a trusted source of evidence-based information, best practices, and tools.

Grow the community

By identifying and inviting ALS/MND organizations not yet part of the Alliance, and by supporting the creation and development of new organizations, we expand the community working toward a world free of ALS/MND.

Learn More

Alliance Strategy 2026–2028

Our three-year roadmap for driving global collaboration toward a world free of ALS/MND.

Read the Strategy →

Annual Report 2024–2025

A review of the Alliance’s work and impact over the past year.

Read the Annual Report →

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

  • David Bishop, UK

    David Bishop, UK

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Anita Forte, USA

    Anita Forte, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Bob Simonds, USA

    Bob Simonds, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Willi Klein, UK

    Willi Klein, UK

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Timmy, Belgium

    Timmy, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Rosie Riley, USA

    Rosie Riley, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jason Goodman, USA

    Jason Goodman, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Olga, Argentina

    Olga, Argentina

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Rob Tison, USA

    Rob Tison, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

Learn more about the March of Faces

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