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International Alliance of ALS/MND Associations

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Who We Are

The International Alliance of ALS/MND Associations was founded in 1992. Today, we bring together more than 80 member organizations across the globe, united by a single vision: a world free of ALS/MND.

Everything we do is centred around the fundamental rights of people affected by ALS/MND — the belief that where you live should not determine the quality of care, support, and respect you receive.

We work alongside our members to raise awareness, coordinate research, advocate for equitable access to care and therapies, and ensure that under-represented communities are not left behind. Our global reach means that knowledge, tools, and best practices developed anywhere in the world can benefit people everywhere.

What Guides Us

Our Vision

A world free of ALS/MND

Our Aspiration

To drive global collaboration

Our Reach

We work globally, serving the entire ALS/MND community — people living with the disease, caregivers, clinicians, researchers, and the organizations that support them.

Our Purpose

Everything we do is oriented around one purpose: accelerating progress on the Fundamental Rights of people affected by ALS/MND, everywhere in the world.

Our Strategic Priorities

The Alliance’s 2026–2028 Strategy sets out six priorities that will guide our work over the coming years.

Bring focus to quality of life

We advocate more effectively to improve outcomes by understanding what people living with ALS/MND (PALS) and their community identify as important.

Include under-represented communities

By working alongside under-represented communities, we ensure meaningful inclusion across the globe so geography does not dictate destiny.

Increase awareness of ALS/MND

By raising awareness of ALS/MND and the Alliance, we strengthen our advocacy efforts at the global level, which supports our members at the local level.

Facilitate research coordination

By bringing people together and facilitating research coordination across the globe, we deepen our understanding of ALS/MND and accelerate research.

Leverage collective capacity

By coordinating with our members and partnering in strategic international collaborations, we leverage collective knowledge and resources — positioning the Alliance as a trusted source of evidence-based information, best practices, and tools.

Grow the community

By identifying and inviting ALS/MND organizations not yet part of the Alliance, and by supporting the creation and development of new organizations, we expand the community working toward a world free of ALS/MND.

Learn More

Alliance Strategy 2026–2028

Our three-year roadmap for driving global collaboration toward a world free of ALS/MND.

Read the Strategy →

Annual Report 2024–2025

A review of the Alliance’s work and impact over the past year.

Read the Annual Report →

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • John Sweeney, USA

    John Sweeney, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Liam Dwyer, England

    Liam Dwyer, England

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Jean

    Jean
    jean

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • JP

    JP

  • Ali Var, Turkey

    Ali Var, Turkey

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Len Johnrose, England

    Len Johnrose, England

  • Jean Waters, UK

    Jean Waters, UK

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Mark Miller, UK

    Mark Miller, UK

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • David Bishop, UK

    David Bishop, UK

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

Learn more about the March of Faces

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