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International Alliance of ALS/MND Associations

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Who We Are

The International Alliance of ALS/MND Associations was founded in 1992. Today, we bring together more than 80 member organizations across the globe, united by a single vision: a world free of ALS/MND.

Everything we do is centred around the fundamental rights of people affected by ALS/MND — the belief that where you live should not determine the quality of care, support, and respect you receive.

We work alongside our members to raise awareness, coordinate research, advocate for equitable access to care and therapies, and ensure that under-represented communities are not left behind. Our global reach means that knowledge, tools, and best practices developed anywhere in the world can benefit people everywhere.

What Guides Us

Our Vision

A world free of ALS/MND

Our Aspiration

To drive global collaboration

Our Reach

We work globally, serving the entire ALS/MND community — people living with the disease, caregivers, clinicians, researchers, and the organizations that support them.

Our Purpose

Everything we do is oriented around one purpose: accelerating progress on the Fundamental Rights of people affected by ALS/MND, everywhere in the world.

Our Strategic Priorities

The Alliance’s 2026–2028 Strategy sets out six priorities that will guide our work over the coming years.

Bring focus to quality of life

We advocate more effectively to improve outcomes by understanding what people living with ALS/MND (PALS) and their community identify as important.

Include under-represented communities

By working alongside under-represented communities, we ensure meaningful inclusion across the globe so geography does not dictate destiny.

Increase awareness of ALS/MND

By raising awareness of ALS/MND and the Alliance, we strengthen our advocacy efforts at the global level, which supports our members at the local level.

Facilitate research coordination

By bringing people together and facilitating research coordination across the globe, we deepen our understanding of ALS/MND and accelerate research.

Leverage collective capacity

By coordinating with our members and partnering in strategic international collaborations, we leverage collective knowledge and resources — positioning the Alliance as a trusted source of evidence-based information, best practices, and tools.

Grow the community

By identifying and inviting ALS/MND organizations not yet part of the Alliance, and by supporting the creation and development of new organizations, we expand the community working toward a world free of ALS/MND.

Learn More

Alliance Strategy 2026–2028

Our three-year roadmap for driving global collaboration toward a world free of ALS/MND.

Read the Strategy →

Annual Report 2024–2025

A review of the Alliance’s work and impact over the past year.

Read the Annual Report →

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Alex, Argentina

    Alex, Argentina

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Jay Epstein, USA

    Jay Epstein, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Frank Taylor, USA

    Frank Taylor, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jean

    Jean
    jean

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Zabun Nassar, England

    Zabun Nassar, England

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

Learn more about the March of Faces

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