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International Alliance of ALS/MND Associations

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Who We Are

The International Alliance of ALS/MND Associations was founded in 1992. Today, we bring together more than 80 member organizations across the globe, united by a single vision: a world free of ALS/MND.

Everything we do is centred around the fundamental rights of people affected by ALS/MND — the belief that where you live should not determine the quality of care, support, and respect you receive.

We work alongside our members to raise awareness, coordinate research, advocate for equitable access to care and therapies, and ensure that under-represented communities are not left behind. Our global reach means that knowledge, tools, and best practices developed anywhere in the world can benefit people everywhere.

What Guides Us

Our Vision

A world free of ALS/MND

Our Aspiration

To drive global collaboration

Our Reach

We work globally, serving the entire ALS/MND community — people living with the disease, caregivers, clinicians, researchers, and the organizations that support them.

Our Purpose

Everything we do is oriented around one purpose: accelerating progress on the Fundamental Rights of people affected by ALS/MND, everywhere in the world.

Our Strategic Priorities

The Alliance’s 2026–2028 Strategy sets out six priorities that will guide our work over the coming years.

Bring focus to quality of life

We advocate more effectively to improve outcomes by understanding what people living with ALS/MND (PALS) and their community identify as important.

Include under-represented communities

By working alongside under-represented communities, we ensure meaningful inclusion across the globe so geography does not dictate destiny.

Increase awareness of ALS/MND

By raising awareness of ALS/MND and the Alliance, we strengthen our advocacy efforts at the global level, which supports our members at the local level.

Facilitate research coordination

By bringing people together and facilitating research coordination across the globe, we deepen our understanding of ALS/MND and accelerate research.

Leverage collective capacity

By coordinating with our members and partnering in strategic international collaborations, we leverage collective knowledge and resources — positioning the Alliance as a trusted source of evidence-based information, best practices, and tools.

Grow the community

By identifying and inviting ALS/MND organizations not yet part of the Alliance, and by supporting the creation and development of new organizations, we expand the community working toward a world free of ALS/MND.

Learn More

Alliance Strategy 2026–2028

Our three-year roadmap for driving global collaboration toward a world free of ALS/MND.

Read the Strategy →

Annual Report 2024–2025

A review of the Alliance’s work and impact over the past year.

Read the Annual Report →

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Dick Dayton, USA

    Dick Dayton, USA

  • Philip Brindle, England

    Philip Brindle, England

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Michael Lee, Australia

    Michael Lee, Australia

  • Bayley, Australia

    Bayley, Australia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Jason Goodman, USA

    Jason Goodman, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Lee Millard, England

    Lee Millard, England

  • Rob Tison, USA

    Rob Tison, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Hollister

    Hollister
    hollister

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jay Epstein, USA

    Jay Epstein, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Jean Waters, UK

    Jean Waters, UK

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Timmy, Belgium

    Timmy, Belgium

  • Ali Var, Turkey

    Ali Var, Turkey

  • Lombana, Spain

    Lombana, Spain

  • Glen Elison, USA

    Glen Elison, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

Learn more about the March of Faces

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