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International Alliance of ALS/MND Associations

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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 11 months ago

Website: https://www.als.org.tr/


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Topics Started: 0

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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

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    Shay Rishoni, Netherlands

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    Daniel Hare, USA

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    Yannick Richard, Canada
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  • Jay Epstein, USA

    Jay Epstein, USA

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    Dawn Morton, Scotland

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    Liz Ogg, Scotland

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    Bruno Leanza Mantegna, Italy

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

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    Robbie Caliste, UK

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    Joanne Pratt, Australia

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    Alejandro Aquino, Argentina

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    Rob Tison, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

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    Frank Bos, Netherlands

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    Luis Antonio Pimenta Lima, Brazil

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    Jette Odgaard Villemoes, Denmark

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Michael Lee, Australia

    Michael Lee, Australia

  • Bayley, Australia

    Bayley, Australia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Dick Dayton, USA

    Dick Dayton, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

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    David Hall, USA

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    Jose Rivero Muñoz, Mexico

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Ali Var, Turkey

    Ali Var, Turkey

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

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    Elkin Gaviria, Colombia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Jean Waters, UK

    Jean Waters, UK

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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