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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years, 1 month ago

Website: https://www.als.org.tr/


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

View Calendar

  • Sally Pauls, USA

    Sally Pauls, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Anita Forte, USA

    Anita Forte, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • David Watson, Scotland

    David Watson, Scotland

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Michael Lee, Australia

    Michael Lee, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Ann Nicol, USA

    Ann Nicol, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • David Solomon, UK

    David Solomon, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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