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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • David Bishop, UK

    David Bishop, UK

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Rob Tison, USA

    Rob Tison, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Animesh Kumar, India

    Animesh Kumar, India

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Daniel Hare, USA

    Daniel Hare, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Susan Keldani, USA

    Susan Keldani, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Purningam Jacob, India

    Purningam Jacob, India

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Liam Dwyer, England

    Liam Dwyer, England

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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