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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years, 1 month ago

Website: https://www.als.org.tr/


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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

View Calendar

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Denis Blais, Canada

    Denis Blais, Canada

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Michael Lee, Australia

    Michael Lee, Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jean Waters, UK

    Jean Waters, UK

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Jon Newsome, USA

    Jon Newsome, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Susan Anderson, USA

    Susan Anderson, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Susan Keldani, USA

    Susan Keldani, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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