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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years, 1 month ago

Website: https://www.als.org.tr/


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Topics Started: 0

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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

Dec 7
December 7 - December 8

Allied Professionals Forum

View Calendar

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • David Hall, USA

    David Hall, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Hollister

    Hollister
    hollister

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Olga, Argentina

    Olga, Argentina

  • Phil Rossall, UK

    Phil Rossall, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jean

    Jean
    jean

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Susan Keldani, USA

    Susan Keldani, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Willi Klein, UK

    Willi Klein, UK

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Mark Miller, UK

    Mark Miller, UK

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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