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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years ago

Website: https://www.als.org.tr/


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Frank Taylor, USA

    Frank Taylor, USA

  • David Hall, USA

    David Hall, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Anna Barrow, UK

    Anna Barrow, UK

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jason Goodman, USA

    Jason Goodman, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • John Dinon, Australia

    John Dinon, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Daniel Hare, USA

    Daniel Hare, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Jack Buzby, USA

    Jack Buzby, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Phil Rossall, UK

    Phil Rossall, UK

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Philip Brindle, England

    Philip Brindle, England

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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