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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years ago

Website: https://www.als.org.tr/


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

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    Glen Elison, USA

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    Jon Newsome, USA

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Olga, Argentina

    Olga, Argentina

  • Dick Dayton, USA

    Dick Dayton, USA

  • Mike Small, UK

    Mike Small, UK

  • Steve

    Steve

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • David Watson, Scotland

    David Watson, Scotland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
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  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Philip Brindle, England

    Philip Brindle, England

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Mike Cels, Canada

    Mike Cels, Canada

  • Alex, Argentina

    Alex, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Phil Rossall, UK

    Phil Rossall, UK

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • David Solomon, UK

    David Solomon, UK

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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