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International Alliance of ALS/MND Associations

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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 8 months ago

Website: https://www.als.org.tr/


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Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jun 25
1:00 pm - 2:00 pm ADT

The ALS Turbocharged Living Scale: A New Way to Measure What Matters

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Frank Taylor, USA

    Frank Taylor, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Alex, Argentina

    Alex, Argentina

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Olga, Argentina

    Olga, Argentina

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Steve

    Steve

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Bob Simonds, USA

    Bob Simonds, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Rosie Riley, USA

    Rosie Riley, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Dick Dayton, USA

    Dick Dayton, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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