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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jack Buzby, USA

    Jack Buzby, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Denis Blais, Canada

    Denis Blais, Canada

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • David Watson, Scotland

    David Watson, Scotland

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • David Hall, USA

    David Hall, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Phil Rossall, UK

    Phil Rossall, UK

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Mike Cels, Canada

    Mike Cels, Canada

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Mike Small, UK

    Mike Small, UK

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

Learn more about the March of Faces

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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