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International Alliance of ALS/MND Associations

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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years ago

Website: https://www.als.org.tr/


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

View Calendar

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Purningam Jacob, India

    Purningam Jacob, India

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Ian Gale, Australia

    Ian Gale, Australia

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Daniel Hare, USA

    Daniel Hare, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Bob Simonds, USA

    Bob Simonds, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Mike Small, UK

    Mike Small, UK

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Bayley, Australia

    Bayley, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • JP

    JP

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Timmy, Belgium

    Timmy, Belgium

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Jean

    Jean
    jean

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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