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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Daniel Hare, USA

    Daniel Hare, USA

  • Art Eggert, USA

    Art Eggert, USA

  • John Sweeney, USA

    John Sweeney, USA

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • David Hall, USA

    David Hall, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • JP

    JP

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Ann Nicol, USA

    Ann Nicol, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Timmy, Belgium

    Timmy, Belgium

  • Mike Cels, Canada

    Mike Cels, Canada

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

Learn more about the March of Faces

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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