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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Ann Nicol, USA

    Ann Nicol, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Timmy, Belgium

    Timmy, Belgium

  • Mark Miller, UK

    Mark Miller, UK

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Art Eggert, USA

    Art Eggert, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Philip Brindle, England

    Philip Brindle, England

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • David Bishop, UK

    David Bishop, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jack Buzby, USA

    Jack Buzby, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • David Solomon, UK

    David Solomon, UK

  • Bob Simonds, USA

    Bob Simonds, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Alex, Argentina

    Alex, Argentina

  • John Dinon, Australia

    John Dinon, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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