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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years ago

Website: https://www.als.org.tr/


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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
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  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • JP

    JP

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Jack Buzby, USA

    Jack Buzby, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Christian Bär, Germany

    Christian Bär, Germany

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Rob Tison, USA

    Rob Tison, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Timmy, Belgium

    Timmy, Belgium

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Jason Goodman, USA

    Jason Goodman, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Jon Newsome, USA

    Jon Newsome, USA

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Bayley, Australia

    Bayley, Australia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Paul Launer, USA

    Paul Launer, USA

  • Glen Elison, USA

    Glen Elison, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Ann Nicol, USA

    Ann Nicol, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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