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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 12 months ago

Website: https://www.als.org.tr/


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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Mike Cels, Canada

    Mike Cels, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Jean

    Jean
    jean

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Phil Rossall, UK

    Phil Rossall, UK

  • Susan Keldani, USA

    Susan Keldani, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Lombana, Spain

    Lombana, Spain

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Greg Heydet, USA

    Greg Heydet, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Jean Waters, UK

    Jean Waters, UK

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Rosie Riley, USA

    Rosie Riley, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Olga, Argentina

    Olga, Argentina

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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