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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years ago

Website: https://www.als.org.tr/


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Ann Nicol, USA

    Ann Nicol, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • David Solomon, UK

    David Solomon, UK

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Anita Forte, USA

    Anita Forte, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Phil Rossall, UK

    Phil Rossall, UK

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Mike Small, UK

    Mike Small, UK

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Zabun Nassar, England

    Zabun Nassar, England

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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