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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years ago

Website: https://www.als.org.tr/


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Willi Klein, UK

    Willi Klein, UK

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Bayley, Australia

    Bayley, Australia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Phil Rossall, UK

    Phil Rossall, UK

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • David Watson, Scotland

    David Watson, Scotland

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Susan Anderson, USA

    Susan Anderson, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Jean Waters, UK

    Jean Waters, UK

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Anita Forte, USA

    Anita Forte, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Brian Parsons, Canada

    Brian Parsons, Canada

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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