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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • Mark Miller, UK

    Mark Miller, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Lee Millard, England

    Lee Millard, England

  • Lombana, Spain

    Lombana, Spain

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • John Dinon, Australia

    John Dinon, Australia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Animesh Kumar, India

    Animesh Kumar, India

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Ian Gale, Australia

    Ian Gale, Australia

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

Learn more about the March of Faces

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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