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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 10 months ago

Website: https://www.als.org.tr/


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Susan Keldani, USA

    Susan Keldani, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Lee Millard, England

    Lee Millard, England

  • Zabun Nassar, England

    Zabun Nassar, England

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Animesh Kumar, India

    Animesh Kumar, India

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Bayley, Australia

    Bayley, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Jean

    Jean
    jean

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • David Bishop, UK

    David Bishop, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Glen Elison, USA

    Glen Elison, USA

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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