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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 10 months ago

Website: https://www.als.org.tr/


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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

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    Yessenia Hernandez Mendoza, Mexico

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    Federica Mastrosimone, Italy

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    Claudia Gotti, Brazil

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    Enzo Maccarrone, Italy

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    Glen Elison, USA

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    Philip Brindle, England

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    Ywan Dierick, Belgium

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    Erwin Coppejans, Belgium

  • Olga, Argentina

    Olga, Argentina

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    Maria Santos Garcia Tellez, Mexico

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    João Marcos Andrietta, Brazil

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    Carlos Alberto Báez Murillo, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

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    Ana Lilia Rodriguez, Mexico

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • JP

    JP

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Bob Simonds, USA

    Bob Simonds, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

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    Dan Doctoroff, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Mike Cels, Canada

    Mike Cels, Canada

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    Mirca Bersani, Italy
    MircaBersani

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Denis Blais, Canada

    Denis Blais, Canada

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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