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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
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    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Olga, Argentina

    Olga, Argentina

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Lee Millard, England

    Lee Millard, England

  • Jay Epstein, USA

    Jay Epstein, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
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  • Alex, Argentina

    Alex, Argentina

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Mark Miller, UK

    Mark Miller, UK

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Jean

    Jean
    jean

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Steve

    Steve

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Daniel Hare, USA

    Daniel Hare, USA

  • David Solomon, UK

    David Solomon, UK

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • David Hall, USA

    David Hall, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • David Bishop, UK

    David Bishop, UK

  • Ali Var, Turkey

    Ali Var, Turkey

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Purningam Jacob, India

    Purningam Jacob, India

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Zabun Nassar, England

    Zabun Nassar, England

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Bob Simonds, USA

    Bob Simonds, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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