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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 10 months ago

Website: https://www.als.org.tr/


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Christian Bär, Germany

    Christian Bär, Germany

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Jason Goodman, USA

    Jason Goodman, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Hollister

    Hollister
    hollister

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Zabun Nassar, England

    Zabun Nassar, England

  • Greg Heydet, USA

    Greg Heydet, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Steve

    Steve

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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