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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 10 months ago

Website: https://www.als.org.tr/


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • John Russo, USA

    John Russo, USA
    final3878

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Greg Heydet, USA

    Greg Heydet, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Lombana, Spain

    Lombana, Spain

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Steve

    Steve

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Alex, Argentina

    Alex, Argentina

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Art Eggert, USA

    Art Eggert, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • John Dinon, Australia

    John Dinon, Australia

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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