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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Greg Heydet, USA

    Greg Heydet, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Jean Waters, UK

    Jean Waters, UK

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Michael Lee, Australia

    Michael Lee, Australia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • John Dinon, Australia

    John Dinon, Australia

  • Philip Brindle, England

    Philip Brindle, England

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • David Solomon, UK

    David Solomon, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Ian Gale, Australia

    Ian Gale, Australia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Animesh Kumar, India

    Animesh Kumar, India

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Hollister

    Hollister
    hollister

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Paul Launer, USA

    Paul Launer, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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