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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Anna Barrow, UK

    Anna Barrow, UK

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • David Solomon, UK

    David Solomon, UK

  • Ann Nicol, USA

    Ann Nicol, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Mike Small, UK

    Mike Small, UK

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Jason Goodman, USA

    Jason Goodman, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Jean Waters, UK

    Jean Waters, UK

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

  • Alex, Argentina

    Alex, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Paul Launer, USA

    Paul Launer, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

Learn more about the March of Faces

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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