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alsmnhturkiye

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@alsmnhturkiye

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Registered: 10 years, 1 month ago

Website: https://www.als.org.tr/


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Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

View Calendar

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Animesh Kumar, India

    Animesh Kumar, India

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • John Russo, USA

    John Russo, USA
    final3878

  • Michael Lee, Australia

    Michael Lee, Australia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Hollister

    Hollister
    hollister

  • JP

    JP

  • Jean

    Jean
    jean

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Philip Brindle, England

    Philip Brindle, England

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • David Solomon, UK

    David Solomon, UK

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Lombana, Spain

    Lombana, Spain

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Jean Waters, UK

    Jean Waters, UK

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Bob Simonds, USA

    Bob Simonds, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Jay Epstein, USA

    Jay Epstein, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • David Hall, USA

    David Hall, USA

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Rosie Riley, USA

    Rosie Riley, USA

  • Olga, Argentina

    Olga, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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