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alsmnhturkiye

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@alsmnhturkiye

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Registered: 9 years, 9 months ago

Website: https://www.als.org.tr/


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Michael Lee, Australia

    Michael Lee, Australia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Ian Gale, Australia

    Ian Gale, Australia

  • David Watson, Scotland

    David Watson, Scotland

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • David Hall, USA

    David Hall, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Jean

    Jean
    jean

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Jean Waters, UK

    Jean Waters, UK

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Dick Dayton, USA

    Dick Dayton, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Art Eggert, USA

    Art Eggert, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Greg Heydet, USA

    Greg Heydet, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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