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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
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  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • JP

    JP

  • Zabun Nassar, England

    Zabun Nassar, England

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Ian Gale, Australia

    Ian Gale, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Paul Launer, USA

    Paul Launer, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • David Solomon, UK

    David Solomon, UK

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Daniel Hare, USA

    Daniel Hare, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Lee Millard, England

    Lee Millard, England

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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