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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Alex, Argentina

    Alex, Argentina

  • Rosie Riley, USA

    Rosie Riley, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Denis Blais, Canada

    Denis Blais, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Ali Var, Turkey

    Ali Var, Turkey

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Susan Keldani, USA

    Susan Keldani, USA

  • Purningam Jacob, India

    Purningam Jacob, India

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • David Hall, USA

    David Hall, USA

  • Mike Small, UK

    Mike Small, UK

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Lombana, Spain

    Lombana, Spain

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Lee Millard, England

    Lee Millard, England

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Sally Pauls, USA

    Sally Pauls, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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