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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
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  • Support for Family & Caregivers
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Programs & Events

  • Calendar of Events/Programs
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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Timmy, Belgium

    Timmy, Belgium

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • John Dinon, Australia

    John Dinon, Australia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • John Russo, USA

    John Russo, USA
    final3878

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Bob Simonds, USA

    Bob Simonds, USA

  • David Bishop, UK

    David Bishop, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Alex, Argentina

    Alex, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Phil Rossall, UK

    Phil Rossall, UK

  • Dick Dayton, USA

    Dick Dayton, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • David Hall, USA

    David Hall, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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