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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Animesh Kumar, India

    Animesh Kumar, India

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Daniel Hare, USA

    Daniel Hare, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Lombana, Spain

    Lombana, Spain

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Timmy, Belgium

    Timmy, Belgium

  • Christian Bär, Germany

    Christian Bär, Germany

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Dick Dayton, USA

    Dick Dayton, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Jack Buzby, USA

    Jack Buzby, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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