• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

alsmnhturkiye

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Forum Replies Created

Viewing 1 post (of 1 total)
  • Author
    Posts
  • April 10, 2017 at 2:35 pm in reply to: NFL and Soccer Players – ALS/MND Statistics #2664
    alsmnhturkiye
    Participant

      Thanks Rachel, any info appreciated 😉
      Alper

    • Author
      Posts
    Viewing 1 post (of 1 total)

    Primary Sidebar

    Advocacy

    • Advocacy Toolkit

    Approved Drugs

    • Nuedexta
    • Radicava/Edaravone
    • Riluzole/Tiglutik
    • Rozebalamin / Methylcobalamin
    • Tofersen/Qalsody

    Drugs in Development

    • AB Science – Masitinib
    • NurOwn
    • Clene Nanomedicine – CNM-Au8
    • ILB
    • Kadimastem – AstroRx
    • Neuronata-R / Lenzumestrocel
    • NeuroSense – PrimeC
    • NP001
    • Prilenia Therapeutics – Pridopidine
    • SOD1 Therapies & Trials
    • SPG302
    • Regulatory T Cell Enhancing Therapies
    • Ulefnersen

    Care services

    • Genetic Counselling & Testing
    • Mental Health Support
    • Nursing and Symptom Management
    • Nutrition, Swallowing and Saliva
    • Activities of Daily Living and Occupational Therapy
    • Muscles, Mobility and Exercise
    • Respiratory Care
    • Speech and Communication
    • Support for Family & Caregivers
    • Technology

    Support for members

    • Alliance Support Grant
    • About the meetings

    Programs & Events

    • Calendar of Events/Programs
    • Alliance Webinars
    • Alliance Meeting
    • Allied Professionals Forum
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • International Symposium

    About

    • Who We Are
    • Board of Trustees
    • Councils, Forums & Committees
      • PALS and CALS Advisory Council
      • Scientific Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
      • Meetings
    • Awards

    Upcoming Events

    Nov 2
    2:00 pm - 3:00 pm EST

    ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

    Nov 3
    2:00 pm - 3:00 pm EST

    ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

    Nov 4
    8:00 am - 9:00 am EST

    Webinar: Annual Clinical Trials Update

    Nov 4
    2:00 pm - 3:00 pm EST

    ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

    Nov 6
    November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

    Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

    View Calendar

    • Ailsa Malcolm-Hutton, UK

      Ailsa Malcolm-Hutton, UK

    • Dr. Shelly Hoover, USA

      Dr. Shelly Hoover, USA

    • Timmy, Belgium

      Timmy, Belgium

    • Ching-Liang Chu, Taiwan

      Ching-Liang Chu, Taiwan

    • Joyce Rusinak, USA

      Joyce Rusinak, USA

    • Ali Var, Turkey

      Ali Var, Turkey

    • Purningam Jacob, India

      Purningam Jacob, India

    • Lucy Lintott, Scotland

      Lucy Lintott, Scotland

    • Cassio Fernando da Silva, Brazil

      Cassio Fernando da Silva, Brazil

    • Shaleen Latchman, Canada

      Shaleen Latchman, Canada

    • Maurice LeClerc, Canada

      Maurice LeClerc, Canada

    • Paul Launer, USA

      Paul Launer, USA

    • Shay Rishoni, Netherlands

      Shay Rishoni, Netherlands

    • Dan Doctoroff, USA

      Dan Doctoroff, USA

    • Roxana Canova, Argentina

      Roxana Canova, Argentina

    • Chun Ju Xiao, China

      Chun Ju Xiao, China

    • Alfredo Santos, Colombia

      Alfredo Santos, Colombia

    • Zelina Brito, Brazil

      Zelina Brito, Brazil

    • John Sweeney, USA

      John Sweeney, USA

    • Chih Ching Darren Wong, Malaysia

      Chih Ching Darren Wong, Malaysia

    • Norm MacIsaac, Canada

      Norm MacIsaac, Canada

    • Len Johnrose, England

      Len Johnrose, England

    • Sanjay Kumar Srivastava, India

      Sanjay Kumar Srivastava, India

    • Yolanda Armendariz, Mexico

      Yolanda Armendariz, Mexico

    • H. Todd Kelly, USA

      H. Todd Kelly, USA

    • Manuel Arn, Switzerland

      Manuel Arn, Switzerland

    • Bob Simonds, USA

      Bob Simonds, USA

    • Catherine Pearce, Australia

      Catherine Pearce, Australia

    • Christian Bär, Germany

      Christian Bär, Germany

    • Fabrice Kamp, Germany

      Fabrice Kamp, Germany

    • Mikey Stone, ALS

      Mikey Stone, ALS

    • Marco Antonio Alvarez Mercado, Mexico

      Marco Antonio Alvarez Mercado, Mexico

    • Daniel Hare, USA

      Daniel Hare, USA

    • Michael Lee, Australia

      Michael Lee, Australia

    • Andres Estevez Guersznik, Ireland

      Andres Estevez Guersznik, Ireland

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Hanne Stenmose, Denmark

      Hanne Stenmose, Denmark

    • Graham Johnson, Australia

      Graham Johnson, Australia

    • Mahmood Anwar, UK

      Mahmood Anwar, UK

    • Wilfried Leusing, Germany

      Wilfried Leusing, Germany

    • Josée Kolijn-de Man, Netherlands

      Josée Kolijn-de Man, Netherlands

    • Aida Trzmiel de Guterman, Argentina

      Aida Trzmiel de Guterman, Argentina

    • Conny van der Meijden, Netherlands

      Conny van der Meijden, Netherlands

    • Joy Blakeley, Australia

      Joy Blakeley, Australia

    • Feng Gin Sun, China

      Feng Gin Sun, China

    • Juvenal Bayona Romero, Colombia

      Juvenal Bayona Romero, Colombia

    • Ada Garrido Benavidez, Mexico

      Ada Garrido Benavidez, Mexico

    • Jon Newsome, USA

      Jon Newsome, USA

    • Alex, Argentina

      Alex, Argentina

    • Eric Von Schaumburg, USA

      Eric Von Schaumburg, USA

    Learn more about the March of Faces

    Coronavirus (COVID-19) Resources

    Instructions

    First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

    If you have already registered, please use the details provided to log in using this form.

    Drugs No Longer in Development

    • AMX0035
    • Reldesemtiv
    • Arimoclomol
    • TUDCA

    Footer

    Stay connected to the global ALS/MND community.

    Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login