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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Jay Epstein, USA

    Jay Epstein, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • David Hall, USA

    David Hall, USA

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Michael Lee, Australia

    Michael Lee, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Bob Simonds, USA

    Bob Simonds, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Steve

    Steve

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Jack Buzby, USA

    Jack Buzby, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • David Bishop, UK

    David Bishop, UK

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Paul Launer, USA

    Paul Launer, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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