• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

alsmnhturkiye

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Topics Engaged In

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • David Solomon, UK

    David Solomon, UK

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Sally Pauls, USA

    Sally Pauls, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Greg Heydet, USA

    Greg Heydet, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Denis Blais, Canada

    Denis Blais, Canada

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • David Bishop, UK

    David Bishop, UK

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • JP

    JP

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Ali Var, Turkey

    Ali Var, Turkey

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login