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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jun 25
1:00 pm - 2:00 pm ADT

The ALS Turbocharged Living Scale: A New Way to Measure What Matters

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Susan Anderson, USA

    Susan Anderson, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Zabun Nassar, England

    Zabun Nassar, England

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Jean Waters, UK

    Jean Waters, UK

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Art Eggert, USA

    Art Eggert, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Lee Millard, England

    Lee Millard, England

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Mark Miller, UK

    Mark Miller, UK

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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