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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Jon Newsome, USA

    Jon Newsome, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Phil Rossall, UK

    Phil Rossall, UK

  • Bayley, Australia

    Bayley, Australia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Glen Elison, USA

    Glen Elison, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Timmy, Belgium

    Timmy, Belgium

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Art Eggert, USA

    Art Eggert, USA

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Animesh Kumar, India

    Animesh Kumar, India

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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