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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • David Hall, USA

    David Hall, USA

  • Frank Taylor, USA

    Frank Taylor, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • John Sweeney, USA

    John Sweeney, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Steve

    Steve

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Anna Barrow, UK

    Anna Barrow, UK

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Alex, Argentina

    Alex, Argentina

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Len Johnrose, England

    Len Johnrose, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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