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International Alliance of ALS/MND Associations

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Gudjon_Iceland

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@gudjon_iceland

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Registered: 9 years, 11 months ago


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Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • John Sweeney, USA

    John Sweeney, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Ali Var, Turkey

    Ali Var, Turkey

  • Mark Miller, UK

    Mark Miller, UK

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Daniel Hare, USA

    Daniel Hare, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • Mike Small, UK

    Mike Small, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
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  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
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  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Phil Rossall, UK

    Phil Rossall, UK

  • Ann Nicol, USA

    Ann Nicol, USA

  • Sally Pauls, USA

    Sally Pauls, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Steve

    Steve

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Dick Dayton, USA

    Dick Dayton, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Christian Bär, Germany

    Christian Bär, Germany

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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