• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Gudjon_Iceland

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

@gudjon_iceland

Profile

Registered: 9 years, 10 months ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Participant

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • John Sweeney, USA

    John Sweeney, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Olga, Argentina

    Olga, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Jason Goodman, USA

    Jason Goodman, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Mike Small, UK

    Mike Small, UK

  • Bayley, Australia

    Bayley, Australia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • David Bishop, UK

    David Bishop, UK

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • David Hall, USA

    David Hall, USA

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Anna Barrow, UK

    Anna Barrow, UK

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login