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International Alliance of ALS/MND Associations

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Gudjon_Iceland

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@gudjon_iceland

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Registered: 9 years, 9 months ago


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Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Timmy, Belgium

    Timmy, Belgium

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Alex, Argentina

    Alex, Argentina

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Lee Millard, England

    Lee Millard, England

  • David Hall, USA

    David Hall, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Phil Rossall, UK

    Phil Rossall, UK

  • Len Johnrose, England

    Len Johnrose, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Animesh Kumar, India

    Animesh Kumar, India

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Bob Simonds, USA

    Bob Simonds, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Greg Heydet, USA

    Greg Heydet, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Purningam Jacob, India

    Purningam Jacob, India

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Denis Blais, Canada

    Denis Blais, Canada

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Liam Dwyer, England

    Liam Dwyer, England

  • Art Eggert, USA

    Art Eggert, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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