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International Alliance of ALS/MND Associations

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Gudjon_Iceland

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@gudjon_iceland

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Registered: 9 years, 9 months ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Participant

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
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  • Awards

Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Frank Taylor, USA

    Frank Taylor, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Daniel Hare, USA

    Daniel Hare, USA

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Susan Anderson, USA

    Susan Anderson, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Rosie Riley, USA

    Rosie Riley, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Jack Buzby, USA

    Jack Buzby, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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