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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Paul Launer, USA

    Paul Launer, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Ann Nicol, USA

    Ann Nicol, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Lombana, Spain

    Lombana, Spain

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Sally Pauls, USA

    Sally Pauls, USA

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Phil Rossall, UK

    Phil Rossall, UK

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Greg Heydet, USA

    Greg Heydet, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Anita Forte, USA

    Anita Forte, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Philip Brindle, England

    Philip Brindle, England

  • Rob Tison, USA

    Rob Tison, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • David Watson, Scotland

    David Watson, Scotland

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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