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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Paul Launer, USA

    Paul Launer, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Bayley, Australia

    Bayley, Australia

  • Mike Small, UK

    Mike Small, UK

  • Alex, Argentina

    Alex, Argentina

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Jason Goodman, USA

    Jason Goodman, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Ian Gale, Australia

    Ian Gale, Australia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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