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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • David Bishop, UK

    David Bishop, UK

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
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  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Liam Dwyer, England

    Liam Dwyer, England

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Olga, Argentina

    Olga, Argentina

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Mark Miller, UK

    Mark Miller, UK

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Lee Millard, England

    Lee Millard, England

  • Susan Keldani, USA

    Susan Keldani, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Ian Gale, Australia

    Ian Gale, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • David Watson, Scotland

    David Watson, Scotland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Anita Forte, USA

    Anita Forte, USA

  • John Russo, USA

    John Russo, USA
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Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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