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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Advocacy and Public Policy Forum
    • Research Directors Forum
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Anna Barrow, UK

    Anna Barrow, UK

  • Rosie Riley, USA

    Rosie Riley, USA

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Lee Millard, England

    Lee Millard, England

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Animesh Kumar, India

    Animesh Kumar, India

  • Philip Brindle, England

    Philip Brindle, England

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Lombana, Spain

    Lombana, Spain

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Jason Goodman, USA

    Jason Goodman, USA

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • JP

    JP

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Susan Anderson, USA

    Susan Anderson, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Jon Newsome, USA

    Jon Newsome, USA

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Jon Newsome, USA

    Jon Newsome, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Willi Klein, UK

    Willi Klein, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Hollister

    Hollister
    hollister

  • Michael Lee, Australia

    Michael Lee, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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