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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

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Programs & Events

  • Calendar of Events/Programs
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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Glen Elison, USA

    Glen Elison, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Anna Barrow, UK

    Anna Barrow, UK

  • Art Eggert, USA

    Art Eggert, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Rosie Riley, USA

    Rosie Riley, USA

  • Bayley, Australia

    Bayley, Australia

  • Lombana, Spain

    Lombana, Spain

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Michael Lee, Australia

    Michael Lee, Australia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Jon Newsome, USA

    Jon Newsome, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Greg Heydet, USA

    Greg Heydet, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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