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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Advocacy and Public Policy Forum
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Animesh Kumar, India

    Animesh Kumar, India

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Zabun Nassar, England

    Zabun Nassar, England

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Willi Klein, UK

    Willi Klein, UK

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Ann Nicol, USA

    Ann Nicol, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • David Solomon, UK

    David Solomon, UK

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Lombana, Spain

    Lombana, Spain

  • David Bishop, UK

    David Bishop, UK

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Ian Gale, Australia

    Ian Gale, Australia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Jon Newsome, USA

    Jon Newsome, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Art Eggert, USA

    Art Eggert, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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