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International Alliance of ALS/MND Associations

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Gudjon_Iceland

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • David Bishop, UK

    David Bishop, UK

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Hollister

    Hollister
    hollister

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • John Sweeney, USA

    John Sweeney, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Timmy, Belgium

    Timmy, Belgium

  • David Solomon, UK

    David Solomon, UK

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Denis Blais, Canada

    Denis Blais, Canada

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Alex, Argentina

    Alex, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • David Watson, Scotland

    David Watson, Scotland

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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