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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Jean Waters, UK

    Jean Waters, UK

  • Rosie Riley, USA

    Rosie Riley, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Hollister

    Hollister
    hollister

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jean

    Jean
    jean

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Bayley, Australia

    Bayley, Australia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Dick Dayton, USA

    Dick Dayton, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Alex, Argentina

    Alex, Argentina

  • Animesh Kumar, India

    Animesh Kumar, India

  • Philip Brindle, England

    Philip Brindle, England

  • JP

    JP

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Jay Epstein, USA

    Jay Epstein, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Susan Keldani, USA

    Susan Keldani, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Michel Perrozzo, France

    Michel Perrozzo, France

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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