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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Michael Lee, Australia

    Michael Lee, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Rob Tison, USA

    Rob Tison, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Lee Millard, England

    Lee Millard, England

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Rosie Riley, USA

    Rosie Riley, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Liam Dwyer, England

    Liam Dwyer, England

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Ian Gale, Australia

    Ian Gale, Australia

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Bob Simonds, USA

    Bob Simonds, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Glen Elison, USA

    Glen Elison, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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