• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • What is ALS/MND
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • Diagnostic Delay (in development)
  • Events/Programs
    • Calendar of Events/Programs
    • Alliance Meeting
    • Allied Professionals Forum
    • Alliance Webinars
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Patient Fellows Program
    • Global CRLI
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Reply To: Newcomer

International Alliance of ALS/MND Associations › Forums › Member Forum › Newcomer › Reply To: Newcomer

September 29, 2016 at 10:06 pm #2167
Gudjon_Iceland
Participant

    Greetings to you as well my dear friends from Turkey and around the world.

    Primary Sidebar

    • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

      Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    • Timmy, ALS Liga

      Timmy, ALS Liga

    • Maurice Leclerc, Canada

      Maurice Leclerc, Canada

    • JP

      JP

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Joanne Pratt, Diagnosed 2011 , MND Australia

      Joanne Pratt, Diagnosed 2011 , MND Australia

    • David Watson,  MND Scotland,  Diagnosed 2018

      David Watson, MND Scotland, Diagnosed 2018

    • Fabio Correia

      Fabio Correia

    • Kris Van Reusel, Belgium

      Kris Van Reusel, Belgium

    • March of Faces Photo Submission_OLGA_ELA ARGENTINA

      March of Faces Photo Submission_OLGA_ELA ARGENTINA

    • Graham Johnson, MND Australia

      Graham Johnson, MND Australia

    • Glen Elison,  ALS Hope Foundation,  Diagnosed 2019,  USA

      Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    • Joyce Rusinak, Forbes Norris ALS Center, USA

      Joyce Rusinak, Forbes Norris ALS Center, USA

    • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

      Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

    • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

      Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    • Enzo Maccarrone, AISLA ONLUS, Italy

      Enzo Maccarrone, AISLA ONLUS, Italy

    • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

      Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

    • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

      Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

    • Andrea Zicchieri, Associazione conSLAncio Onlus, Italy

      Andrea Zicchieri, Associazione conSLAncio Onlus, Italy
      AndreaZicchieri_conSLAncioItaly

    • Liam Dwyer, England

      Liam Dwyer, England

    • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

      Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    • Zelina Brito, Diagnosed 2018, Brazil

      Zelina Brito, Diagnosed 2018, Brazil

    • Chih Ching Darren Wong, MND Malaysia

      Chih Ching Darren Wong, MND Malaysia

    • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

      Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

    • Shera Mukherjee, Diagnosed 2013,  Asha Ek Hope Foundation, India

      Shera Mukherjee, Diagnosed 2013, Asha Ek Hope Foundation, India

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

    • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

      Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

    • Claudette Sturk, ALS Society of Canada

      Claudette Sturk, ALS Society of Canada
      Picture2

    • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

      Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    • John and Loretta Russo, USA

      John and Loretta Russo, USA
      final3878

    • Andrietta

      Andrietta

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • Hollister

      Hollister
      hollister

    • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

      Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

    • Wilfried Leusing, Diagnosed 2010 , DGM, Germany

      Wilfried Leusing, Diagnosed 2010 , DGM, Germany

    • Roy

      Roy
      roy

    • Susan Keldani, Les Turner ALS Foundation, USA

      Susan Keldani, Les Turner ALS Foundation, USA

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    • Malcolm Buck, Australia

      Malcolm Buck, Australia

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Daniel Hare

      Daniel Hare

    • Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

      Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    • Michel Perrozzo, ARSLA, Diagnosed 2015, France

      Michel Perrozzo, ARSLA, Diagnosed 2015, France

    • Norm MacIsaac,  ALS Society of Canada,  ALS Society of Quebec,  Diagnosed 2014

      Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014

    • Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

    • Len Johnrose,  MND Association,  Diagnosed 2017,  England

      Len Johnrose, MND Association, Diagnosed 2017, England

    • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

      Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    • Debbie Craghill, USA

      Debbie Craghill, USA

    • Jose Espinosa, Argentina

      Jose Espinosa, Argentina

    Learn more about the March of Faces

    Latest Tweets

    • Just now

    Footer

    Subscribe to our Bi-Monthly Newsletter

    Sign up to receive updates and to hear what's going on in the International Alliance of ALS/MND Associations.

    "*" indicates required fields

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2025 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login