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alsmnhturkiye

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  • April 10, 2017 at 2:35 pm in reply to: NFL and Soccer Players – ALS/MND Statistics #2664
    alsmnhturkiye
    Participant

      Thanks Rachel, any info appreciated 😉
      Alper

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    • Radicava/Edaravone
    • Riluzole/Tiglutik
    • Rozebalamin/Methylcobalamin
    • Tofersen/Qalsody

    Drugs in Development

    • AB Science – Masitinib
    • BrainStorm Cell Therapeutics – NurOwn
    • Clene Nanomedicine – CNM-Au8
    • ILB – Tikomed
    • Kadimastem – AstroRx
    • Methylcobalamin
    • Mitsubishi Tanabe Pharma America – Oral Edaravone
    • Neuronata-R/Lenzumestrocel
    • NeuroSense – PrimeC
    • Neuvivo – NP001
    • Prilenia Therapeutics – Pridopidine
    • SOD1 Therapies & Trials
    • T Regulatory Cell Therapies
    • Ulefnersen – Ionis Pharmaceuticals

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    Mar 10
    9:00 am - 10:00 am EDT

    Headline Results from the 2025 ALS/MND Fundamental Rights Survey

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    December 5 - December 6

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    • Steven Spencer, Diagnosed 2014 , MND New Zealand

      Steven Spencer, Diagnosed 2014 , MND New Zealand

    • Fabrice Kamp, Germany

      Fabrice Kamp, Germany

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Dr Shelly Hoover

      Dr Shelly Hoover

    • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

      Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

      Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    • Debbie Craghill, USA

      Debbie Craghill, USA

    • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

      Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

    • Art Eggert, USA

      Art Eggert, USA

    • Liam Dwyer, England

      Liam Dwyer, England

    • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

      Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    • Catherine Pearce, Australia

      Catherine Pearce, Australia

    • Anita Forte, Les Turner ALS Foundation, USA

      Anita Forte, Les Turner ALS Foundation, USA

    • Mike Small, Motor Neurone Disease (MND) Association, UK

      Mike Small, Motor Neurone Disease (MND) Association, UK

    • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

      Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

      Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    • Kris Van Reusel, Belgium

      Kris Van Reusel, Belgium

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

      Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

    • Joyce Rusinak, Forbes Norris ALS Center, USA

      Joyce Rusinak, Forbes Norris ALS Center, USA

    • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

      Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

    • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

      Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    • Richard Clark, MND New Zealand,  Diagnosed 2011

      Richard Clark, MND New Zealand, Diagnosed 2011

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

    • Mark Miller

      Mark Miller

    • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

      Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    • Marco Antonio Alvarez Mercado, Mexico

      Marco Antonio Alvarez Mercado, Mexico

    • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

      Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

    • March of Faces Photo Submission_ALEX_ELA ARGENTINA

      March of Faces Photo Submission_ALEX_ELA ARGENTINA

    • Jan Zuring, Diagnosed 2010 , The Netherlands

      Jan Zuring, Diagnosed 2010 , The Netherlands

    • Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

      Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

    • Alan Liz Ogg 29042016 000799 lo res

      Alan Liz Ogg 29042016 000799 lo res

    • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

      Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

    • Greg Heydet, ALS Hope Foundation, USA

      Greg Heydet, ALS Hope Foundation, USA

    • Michel Perrozzo, ARSLA, Diagnosed 2015, France

      Michel Perrozzo, ARSLA, Diagnosed 2015, France

    • Brian Parsons

      Brian Parsons

    • Daniel Hare

      Daniel Hare

    • Claudette Sturk, ALS Society of Canada

      Claudette Sturk, ALS Society of Canada
      Picture2

    • Roxana Canova, Diagnosed 2012 ,  Asociación ELA Argentina

      Roxana Canova, Diagnosed 2012 , Asociación ELA Argentina

    • Armando González Gómez, ACELA, Colombia

      Armando González Gómez, ACELA, Colombia

    • Mauril Bélanger, Diagnosed 2015 , ALS Canada

      Mauril Bélanger, Diagnosed 2015 , ALS Canada

    • JP

      JP

    • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

      Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    • Mike Rannie,  ALS Canada,  Diagnosed 2017

      Mike Rannie, ALS Canada, Diagnosed 2017

    • Wilfried Leusing, Diagnosed 2010 , DGM, Germany

      Wilfried Leusing, Diagnosed 2010 , DGM, Germany

    • Steve Gallagher, ALS Society of Canada

      Steve Gallagher, ALS Society of Canada
      Picture1

    • Chris McCauley, Diagnosed 2015 , ALS Canada

      Chris McCauley, Diagnosed 2015 , ALS Canada

    • Paul Launer, USA

      Paul Launer, USA

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