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International Alliance of ALS/MND Associations

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Advocacy

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Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
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  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
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  • Support for Family & Caregivers
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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Frank Taylor, USA

    Frank Taylor, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Art Eggert, USA

    Art Eggert, USA

  • Bayley, Australia

    Bayley, Australia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Jason Goodman, USA

    Jason Goodman, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • John Dinon, Australia

    John Dinon, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • David Hall, USA

    David Hall, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Timmy, Belgium

    Timmy, Belgium

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • David Bishop, UK

    David Bishop, UK

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Alex, Argentina

    Alex, Argentina

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Steve

    Steve

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Olga, Argentina

    Olga, Argentina

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Ann Nicol, USA

    Ann Nicol, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Susan Anderson, USA

    Susan Anderson, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Philip Brindle, England

    Philip Brindle, England

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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