• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Forum Topics Started

Viewing 2 topics - 1 through 2 (of 2 total)
    • Topic
    • Voices
    • Posts
    • Last Post
    • Coronavirus (COVID-19)

      Started by: Admin in: Member Forum

    • 0
    • 1
    • 6 years, 4 months ago

      Admin

    • Forum Guidelines

      Started by: Admin in: Member Forum

    • 1
    • 1
    • 9 years, 12 months ago

      Admin

  •  

Viewing 2 topics - 1 through 2 (of 2 total)

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Denis Blais, Canada

    Denis Blais, Canada

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Glen Elison, USA

    Glen Elison, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Sally Pauls, USA

    Sally Pauls, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Len Johnrose, England

    Len Johnrose, England

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Greg Heydet, USA

    Greg Heydet, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Paul Launer, USA

    Paul Launer, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jay Epstein, USA

    Jay Epstein, USA

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Mike Cels, Canada

    Mike Cels, Canada

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login