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International Alliance of ALS/MND Associations

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Advocacy

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Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Anna Barrow, UK

    Anna Barrow, UK

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Alex, Argentina

    Alex, Argentina

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Lombana, Spain

    Lombana, Spain

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Rob Tison, USA

    Rob Tison, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Daniel Hare, USA

    Daniel Hare, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Philip Brindle, England

    Philip Brindle, England

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Animesh Kumar, India

    Animesh Kumar, India

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Willi Klein, UK

    Willi Klein, UK

  • Phil Rossall, UK

    Phil Rossall, UK

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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