• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Admin

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Forum Topics Started

Viewing 2 topics - 1 through 2 (of 2 total)
    • Topic
    • Voices
    • Posts
    • Last Post
    • Coronavirus (COVID-19)

      Started by: Admin in: Member Forum

    • 0
    • 1
    • 6 years, 4 months ago

      Admin

    • Forum Guidelines

      Started by: Admin in: Member Forum

    • 1
    • 1
    • 9 years, 11 months ago

      Admin

  •  

Viewing 2 topics - 1 through 2 (of 2 total)

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Dick Dayton, USA

    Dick Dayton, USA

  • David Hall, USA

    David Hall, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Anita Forte, USA

    Anita Forte, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Susan Keldani, USA

    Susan Keldani, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Alex, Argentina

    Alex, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Daniel Hare, USA

    Daniel Hare, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Jay Epstein, USA

    Jay Epstein, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Steve

    Steve

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login