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International Alliance of ALS/MND Associations

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  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
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Emergency Preparedness Toolkit

Best Member Engagement Initiative for 2025: Emergency Preparedness Toolkit

Why Did We Create This Toolkit?

We live in a world that requires us to be prepared for emergencies. Whether it’s an earthquake, living in a conflict zone, natural disasters, power outages, or other unforeseen circumstances, these are difficult situations for people living with ALS/MND and their families.

Everyone’s situation is different, and it is important to plan and be prepared, taking into account your own needs. That’s why we have prepared this toolkit, which includes forms and videos. It will help people living with ALS/MND and their caregivers be ready in the event of an emergency.

Emergency Preparedness Forms

The unique needs of a person living with ALS/MND are important to consider on any given day, and even more so in the event of an emergency. These forms will help people living with ALS/MND and their caregivers outline what is required.

We recommend completing the forms below, having printed versions available, and sharing them with your support network. Also remember to review and update your forms once or twice per year.

Fillable PDF

  • Checklist
  • Medical Emergency Card
  • Emergency Telephone List
  • Medical Summary
  • Medicine Chart
  • Personal Support Network
  • Emergency Supplies Checklist
  • Personal Assessment
  • Disability-related Supplies and Special Equipment

Static PDF

  • Checklist
  • Medical Emergency Card
  • Emergency Telephone List
  • Medical Summary
  • Medicine Chart
  • Personal Support Network
  • Emergency Supplies Checklist
  • Personal Assessment
  • Disability-related Supplies and Special Equipment

Emergency Preparedness Videos

These four videos also provide important information to help make a plan and be prepared.

Understanding Hazards & Disasters

International Human Disasters 

Association & PALS Perspective: First 24 hours / First week 

Emergency Expert: Potential Hazard and Risks, Supply Chain and Infrastructure, Business Continuity, Trauma of Being Involved in Emergency Events 

 

Primary Sidebar

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

  • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    Dawn Morton, Diagnosed 2014 , MND Scotland, UK

  • Joanne Pratt, Diagnosed 2011 , MND Australia

    Joanne Pratt, Diagnosed 2011 , MND Australia

  • Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

    Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • March of Faces Photo Submission_OLGA_ELA ARGENTINA

    March of Faces Photo Submission_OLGA_ELA ARGENTINA

  • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

    Conny van der Meijden, Diagnosed 2001, ALS Netherlands

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

  • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

  • Graham Johnson, MND Australia

    Graham Johnson, MND Australia

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

    Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

  • Tison, USA

    Tison, USA

  • Den Haag, Diagnosed 2016 , The Netherlands

    Den Haag, Diagnosed 2016 , The Netherlands

  • Hollister

    Hollister
    hollister

  • Christian Bär, Germany

    Christian Bär, Germany

  • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

    Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Bayley, Australia

    Bayley, Australia

  • Phil Rossall, MND-Association, UK

    Phil Rossall, MND-Association, UK

  • Jack Buzby, USA

    Jack Buzby, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

    Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

  • Greg Heydet, ALS Hope Foundation, USA

    Greg Heydet, ALS Hope Foundation, USA

  • Anita Forte, Les Turner ALS Foundation, USA

    Anita Forte, Les Turner ALS Foundation, USA

  • Steven Spencer, Diagnosed 2014 , MND New Zealand

    Steven Spencer, Diagnosed 2014 , MND New Zealand

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

  • Denis Blais, Diagnosed 2015 , ALS Canada

    Denis Blais, Diagnosed 2015 , ALS Canada

  • Jason Goodman, Les Turner ALS Foundation, USA

    Jason Goodman, Les Turner ALS Foundation, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • 727747090571358167

    727747090571358167

  • JP

    JP

  • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

    Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Mark Miller

    Mark Miller

  • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

  • Leon Ryba, Asociación ELA Argentina

    Leon Ryba, Asociación ELA Argentina

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

    Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

  • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

  • Joy Blakeley, Diagnosed 2017 , MND Australia

    Joy Blakeley, Diagnosed 2017 , MND Australia

  • Alan Liz Ogg 29042016 000799 lo res

    Alan Liz Ogg 29042016 000799 lo res

Learn more about the March of Faces

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