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International Alliance of ALS/MND Associations

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  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
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      • Amylyx – AMX0035
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Emergency Preparedness Toolkit

Best Member Engagement Initiative for 2025: Emergency Preparedness Toolkit

Why Did We Create This Toolkit?

We live in a world that requires us to be prepared for emergencies. Whether it’s an earthquake, living in a conflict zone, natural disasters, power outages, or other unforeseen circumstances, these are difficult situations for people living with ALS/MND and their families.

Everyone’s situation is different, and it is important to plan and be prepared, taking into account your own needs. That’s why we have prepared this toolkit, which includes forms and videos. It will help people living with ALS/MND and their caregivers be ready in the event of an emergency.

Emergency Preparedness Forms

The unique needs of a person living with ALS/MND are important to consider on any given day, and even more so in the event of an emergency. These forms will help people living with ALS/MND and their caregivers outline what is required.

We recommend completing the forms below, having printed versions available, and sharing them with your support network. Also remember to review and update your forms once or twice per year.

Fillable PDF

  • Checklist
  • Medical Emergency Card
  • Emergency Telephone List
  • Medical Summary
  • Medicine Chart
  • Personal Support Network
  • Emergency Supplies Checklist
  • Personal Assessment
  • Disability-related Supplies and Special Equipment

Static PDF

  • Checklist
  • Medical Emergency Card
  • Emergency Telephone List
  • Medical Summary
  • Medicine Chart
  • Personal Support Network
  • Emergency Supplies Checklist
  • Personal Assessment
  • Disability-related Supplies and Special Equipment

Emergency Preparedness Videos

These four videos also provide important information to help make a plan and be prepared.

Understanding Hazards & Disasters

International Human Disasters 

Association & PALS Perspective: First 24 hours / First week 

Emergency Expert: Potential Hazard and Risks, Supply Chain and Infrastructure, Business Continuity, Trauma of Being Involved in Emergency Events 

 

Primary Sidebar

  • Frank "Papa" Taylor, USA

    Frank “Papa” Taylor, USA

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

  • Lachlan Terry,  MND Australia,  Diagnosed 2015

    Lachlan Terry, MND Australia, Diagnosed 2015

  • Roy

    Roy
    roy

  • Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

  • 727747090571358167

    727747090571358167

  • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

  • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

    Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

  • Joy Blakeley, Diagnosed 2017 , MND Australia

    Joy Blakeley, Diagnosed 2017 , MND Australia

  • Dad

    Dad

  • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

  • Willi Klein

    Willi Klein

  • Kirsty Gerlach, MND New Zealand, Diagnosed 2017

    Kirsty Gerlach, MND New Zealand, Diagnosed 2017

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Leon Ryba, Asociación ELA Argentina

    Leon Ryba, Asociación ELA Argentina

  • Tison, USA

    Tison, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

    Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

  • Enzo Maccarrone, AISLA ONLUS, Italy

    Enzo Maccarrone, AISLA ONLUS, Italy

  • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

  • Steven Spencer, Diagnosed 2014 , MND New Zealand

    Steven Spencer, Diagnosed 2014 , MND New Zealand

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

    Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    Sébastien Batiot, Diagnosed 2012 , ARSLA, France

  • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

    Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

  • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    Liz Ogg, Diagnosed 2013 , MND Scotland, UK

  • Susan Keldani, Les Turner ALS Foundation, USA

    Susan Keldani, Les Turner ALS Foundation, USA

  • Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

    Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

  • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Fabio Carvalho

    Fabio Carvalho

  • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

  • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

  • Jason Goodman, Les Turner ALS Foundation, USA

    Jason Goodman, Les Turner ALS Foundation, USA

  • Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

  • Hollister

    Hollister
    hollister

  • Dick Dayton, USA

    Dick Dayton, USA

  • Joanne Pratt, Diagnosed 2011 , MND Australia

    Joanne Pratt, Diagnosed 2011 , MND Australia

  • Fabio Correia

    Fabio Correia

Learn more about the March of Faces

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